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Butterfly Child

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4.33  ·  Rating details ·  18 ratings  ·  6 reviews
Butterfly Child is the story of a mother’s journey through grief and incredible challenges. From the stillbirth at full term of her first baby, followed by a miscarriage, to the birth of her son Nicky, diagnosed with Recessive Dystrophic Epidermolysis Bullosa, a rare skin blistering disorder that requires extensive wound care and is considered life threatening. Challenges ...more
Paperback, 426 pages
Published March 31st 2015 by Silvia Corradin (first published March 23rd 2015)
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Average rating 4.33  · 
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 ·  18 ratings  ·  6 reviews


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Melissa
I received a copy of the ebook in exchange for my honest opinion.



This book is full with so much love for her child. Silvia would move mountains for Nicky not to live in pain every day. Add in her own heart ache. Losing a child at term. Then, a miscarriage. Silvia finally had a child to love and to be the mother she always knew was in herself, but now she had to rethink how her future would be with a child with special needs. Most of us never heard of EB, Epidermolysis Bullosa, until we hear
...more
Karen Logan
Jul 03, 2015 rated it really liked it
Very poignant and heartbreaking account of a child's life with Epidermolysis Bullosa (EB). This family has been through much more than many of us could possibly endure or imagine. Yet they forge on and deal with each situation with bravery and courage, and constant searching for answers, for solutions, for help, for just the very means of survival with so many odds stacked against them. I thought it was very descriptive of the trials and tribulations they have been through as well as good and ...more
Pam Taylor-huggins
Oct 03, 2016 rated it it was amazing
Silvia Corradin is a compelling author while writing about her journey in life, especially as it relates to her son, Nicky, who suffers from a rare genetic disorder, Recessive Dystrophic Epidermolysis Bullosa, which is the most severe form of this disease. I love her raw and honest perspective and admire her strength and tenancity in terms of her constant research on EB and how she has experimented very well with different treatments for Nicky. Doctors cannot keep up with her. This book made me ...more
Sherri Malia
Jun 15, 2015 rated it it was amazing  ·  review of another edition
Definitely a must read!!!
Such a well written book with great detail. It grabs hold of you from the first page & you just don’t want it to let you go. I have learned so much about EB with this read. But more importantly, I’ve learned not just what the person with the disease goes through, but also what the family members go through as well. There are times that you just want to give up, but you know that is not an option. Thank you for allowing me to travel this journey with you through your
...more
Cindelu
Jun 13, 2016 rated it liked it
I won this book on Goodreads.
It was a very in depth account of a woman's journey with miscarriage, EBS , divorce, financial difficulties and her husband's stroke. It was beautifully written although it often repeated incidents and could have been pared down about 200 pages. The struggles she encountered through out her life show what a loving and strong woman she is. Her son, Nicky is someone to be very proud of also. It was at times heart rending and at times joyful. k
Helen Phillips
May 17, 2015 rated it really liked it
Sylvia God love you I don't know how you were able to handle all the the heartache you had to deal with. I will be praying for Nicky and your family,and hoping for a cure so he can get some relief. I want to thank you for my copy of your book.
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46 followers
Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.
“There was no cure for Recessive Dystrophic Epidermolysis Bullosa, there was also no known treatment, and no drug that improved the condition, not even an injection or medication to give him weekly or daily that would ease the symptoms. Absolutely nothing, zero, zilch.” 1 likes
“The bottom line is that there are very few families who have a family member with a catastrophic medical condition such as RDEB that can survive financially without help.” 1 likes
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