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Misdiagnosed: One Woman's Tour of-And Escape From-Healthcareland: One Woman's Tour of--And Escape From--Healthcareland

3.65  ·  Rating details ·  257 ratings  ·  52 reviews
"Berger movingly details her journey to healing. Her indefatigable quest...underscores the fact that there is no such thing as one size fits all in medicine."--Gayatri Devi, MD, clinical associate professor, NYU School of Medicine, and author of A Calm Brain

Taking charge of your health has never been so important as it is today.

Jody Berger has discovered this first hand:
Kindle Edition, 287 pages
Published September 23rd 2014 by Sourcebooks (first published January 1st 2014)
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Bonbon Why would you want to ruin the story? Having gone through similar medical messes, it is her determination that makes this story. She took the effort…moreWhy would you want to ruin the story? Having gone through similar medical messes, it is her determination that makes this story. She took the effort and time to write her odyssey for us, so read every page!(less)
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Average rating 3.65  · 
Rating details
 ·  257 ratings  ·  52 reviews

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Start your review of Misdiagnosed: One Woman's Tour of-And Escape From-Healthcareland: One Woman's Tour of--And Escape From--Healthcareland
I'm really torn on this book. On one hand, I empathize with the author -- MS is a scary diagnosis. One the other hand, I agree with the Amazon reviewer who called this "one woman's search for the diagnosis she wants to hear." ( It was weird how vehemently she refused interferon treatments for MS but how quickly she accepted other treatments, including IV infusions of chelators, supposedly to remove heavy metals.

There was one vignette in which she visited
ARC for review.

As I approach month nine of my never-ending cycle of diagnosis, misdiagnosis, re-diagnosis and more medical tests than I can imagine most 90 years olds have had, I am coming to this both hopeful and afraid. I think I will hold off on it until AFTER I return from my trip to the Cleveland Clinic this week.

*****As I mentioned above the description of this title so closely mirrors my own experience I wasn't sure whether I would hate it or love it, and ended up liking it, but being a
Jun 16, 2014 rated it it was amazing  ·  review of another edition
At the beginning, Jody is like many of us. She picks her primary care physician off the website fairly randomly, and when she's referred to a specialist who orders a test, she dutifully goes to get the MRI, not knowing what it means, any potential side-effects, or even what it will cost. She trusts the professionals and doesn't question their judgement or recommendations.

Her first shock is when the medical technician - who admits to not having medical training and being unable to diagnose her -
Danielle Fisher
Dec 26, 2014 rated it really liked it  ·  review of another edition
It's amazing to me that it was just 3 short months ago that I spent an entire summer, curled up in a ball, hysterical crying with letters like M.S., MRI's and even A.L.S. being spoken at multiple doctor's appointments. Much like the author, it started with tingling and then became progressively worse, up both arms, up both legs, muscle twitches, spasms, every which where, ER visits, nerve conduction studies and no one knew what was wrong, just sending me to doctor after doctor with more and more ...more
C.M. Shifflett
Sep 21, 2014 rated it it was amazing  ·  review of another edition
The real value of this book is in the "Afterword: Before You See A Doctor." WHAT you must do first for best care and healing. The rest of the book is a detailed illustration of WHY.

In an all-too common story, Berger is "diagnosed" with MS and inappropriately drugged on the basis of a 15-minute interview with a neurologist, one MRI, a set of cookbook assumptions ("young, athletic and female"?!) and symptoms that failed to match the diagnosis. After the initial terror, Berger, a sports
Aug 05, 2014 rated it liked it  ·  review of another edition
This book is difficult to rate. First I thought it deserved two stars at best, maybe one. Then I thought it deserved three stars, or maybe 2.5. After finishing the book and reading the afterword, I decided three stars. The beginning was slow, the middle was painful, and the end was better. The afterword had valuable information for everyone. Thus the book was saved. At times I could not understand how a grown woman could be so indecisive and washy-washy, and I just wanted to tell her to get ...more
Jessica Ashe
Feb 08, 2016 rated it it was amazing
Shelves: favorites
Incredible book from the journey to the myriad of information it provided

There aren't too many books in this particular genre that I just can't put down, but I picked this book up yesterday and have been glued to it ever since.

Jody's story is incredible, heart wrenching and definitely a case for concern with our medical systems. From an MS diagnoses to a gluten intolerance, a little disconcerting that these two could be confused and so quickly by her first doctor.

Almost all the books Jody
I appreciated reading about this woman's journey to get to the bottom of her medical issues but some of the telling seemed a bit too bizarre. I had a difficult time believing her story of going to a father and son team of orthodontists who recommended that they "shave her tongue" because of the possibility of her tongue putting her teeth out of whack. This was during her extensive history of getting braces to fix her teeth. I just don't know about that one. Hmm. Other than that hokey section of ...more
Rick Conti
There are reasons to dislike this book. The biggest is the author. She sounds like a classic entitled 21st century American. She thinks she's entitled to good health, all the time ignoring the fact that the body she worships will eventually betray her, regardless of her "belief system". Her tales of her sex life are distracting, pointless, and exhibitionist. She rejects science in favor of whatever she wants to superstitiously believe. (She shouldn't be allowed to use a cell phone or any other ...more
Vicki - I Love Reading
Jun 21, 2014 rated it really liked it  ·  review of another edition
Shelves: read-2014
I really wasn't sure what to expect from this book. It turned out to be quite an emotional story which leaves you thinking and asking yourself questions.
Follow Jody in her journey through her quest to get answers and then come to terms with her diagnosis. Her Emotions as she tries to understand what it is that is wrong with her, what it is that her body is doing to her or telling her.
This story highlights just how an illness can be misdiagnosed, and how easy it is to take what the experts are
Mimi Fintel
Mar 23, 2015 rated it it was amazing  ·  review of another edition
Jody Berger began experiencing tingling in her hands and feet and her doctor referred her to a neurologist. After ordering an MRI, the neurologist declared that Berger had MS. Since Berger felt fine other than the tingling she decided to investigate other causes for her problem. Her quest for answers took her to Canada to confer with a holistic health educator, to Southern California to visit a physician and brain specialist, to Mexico for a yoga retreat, to Nita Desai, a Boulder physician who ...more
Carla Harris
Jan 12, 2016 rated it it was amazing
Jody is amazing

I am amazed how far Jody went to find her answers. It would be wonderful if everyone had the tools and the ability to research like she did. I like that she gave the questions at the of the book to ask the doctor. However her ability to travel like she did isn't even feasible for 90%of us who might read this book. To get a doctor to listen to us would be like listening to a cadaver. Unfortunately real people don't really get very far in doctor land.
Nov 22, 2014 rated it really liked it  ·  review of another edition
~Received For An Honest Review~

Wasn't sure what to think when I started reading this book. It was different compared to what I was thinking prior to. But I am glad to be able to review this book. It's an eye opener to say the least. It will make you question yourself, how well you know your body and question any medical professional. It's so well written and easy to follow. If you haven't read this book yet, I would recommend you do!
Rita	 Marie
Sep 20, 2016 rated it really liked it  ·  review of another edition
Shelves: read-nonfiction
This isn't an easy read, but IMHO it's a book that everyone should read. The title is perfect -- Healthcareland is a very scary place. Even if your problem is obvious and treatment known (which is not often the case), different doctors will have different opinions based on their training, experience, and career goals (watch out for researchers!).
Melissa Pearson
Apr 02, 2020 rated it it was amazing
Very informative

This book has made me wonder if I am gluten-sensitive or actually gluten-intolerant. Im going to seek out a functional doctor and give them a try. I take 17 prescriptions every day, and have been diagnosed with many conditions throughout my 55 years. I started with digestive problems as an infant and have continued to struggle with them almost every day, along with many other conditions. Great book!
Dec 11, 2019 rated it really liked it  ·  review of another edition
This review has been hidden because it contains spoilers. To view it, click here.
Aimee Lowe Brown
Apr 21, 2019 rated it it was amazing

More books should be written like this. They can be life saving and life changing ! I thoroughly enjoyed it, learned a lot, and noticed a few symptoms in myself. I've been told before times to go gluten free. Lol, I will !
Nov 16, 2017 rated it really liked it
Great "Food for Thought" (no pun intended) to add to my growing arsenal pointing to our diets and gut as the root of all evil!
Maxine (Booklover Catlady)
This is an eye opening book that challenges all of us to think about where we put our trust in regards to our bodies and our health. Jody Berger shares with us her somewhat traumatic, intense and stressful journey from an initial INCORRECT diagnosis of MS (Multiple Sclerosis) to the truth of what was REALLY going on in her body over a period of year.

Written in a very readable memoir style, Jody takes us from her first moment after hearing the results of an MRI scan on her spine - "It's MS",
Carrie Faith Taylor
This is a bizarre adventure worth taking if you are interested in the world of modern medicine. While some of Jody Bergers views are not ones that I hold, I believe that her search for answers in the face of a dark diagnosis can be an inspiration to others. Her writing style is excellent, likely because of her journalism experience. She brings to life the emotions and frustrations of her fight against an unfair diagnosis.

To visit my memoir review blog: (home)
Kelliann Gomez
Oct 23, 2016 rated it did not like it  ·  review of another edition
This review is partly biased because I'm really sick of reading account of upper-middle class people sorting through their health problems within a year or two and then frolicking through the flowers.
Where are the normal people who don't have boyfriends that will pay for them to fly to other countries and states to pay completely out of pocket for care..? Or the people who can't afford long yoga retreats in other states and countries? ... Or the ones who can barely get by and afford medical
Oct 29, 2014 rated it really liked it  ·  review of another edition
This wasn't a bad book at all. Again I just wanted something random to read and decided I would read this and put in on my Overdrive account to automatically checkout to me when it was available. Well I'm happy I finally got around to reading it before I had to return it because this book further helps reiterate that although doctors and those in the medical field are skilled and educated in what they do it by no means we should put our absolute and total faith in diagnoses without additional ...more
Sep 21, 2014 rated it really liked it  ·  review of another edition
I received this book from the publisher in exchange for my review. I was very interested to read Jody's experience after having worked in healthcare for more than 30 years, many years as a patient advocate. Time pressures that physicians face to see more patients are often not helpful to either the patient or the physician. "If you have a hammer, everything looks like a nail" is an apt description of the way various disciplines viewed her condition and recommended conflicting approaches. The ...more
Jan 14, 2016 rated it liked it  ·  review of another edition
This book gets off to a slow start, with lots of unaswerable rhetorical questions in the first 100 pages and more detail than most readers would tolerate. The essence of it is the author being misdiagnosed with MS, since it's kind of a catch-all diagnosis of last resort. It turns out all the author's symptoms are from celiac disease, so once she realizes that and cuts gluten out of her diet, she's fine. The last 30 or so pages of the book are the most interesting part.

Another good question she
Feb 25, 2016 rated it it was ok  ·  review of another edition
I am reading books on this topic because I, too, have spent a frustrating year of illness being knocked around the system like a ping pong ball. I am interested in others' experiences in general, but of course also in the possibility of finding a way to get off the merry go round, disengage from the disappointments of western medicine, and find some solution. This book was interesting but not for my situation. I do not do yoga and I can't meditate. And ironically, the end of this book was not a ...more
Mar 31, 2016 rated it really liked it
What a Journey!

Ms. Observer's odyssey through the world of medical practices is exactly why it is called the practice of medicine. We, patients, are the guinea pigs who suffer through the maze of tests, specialists, medications, diagnoses which are wrong, more tests.......all the time feeling worse, even suicidal in some cases. Jody could have accepted the diagnosis of MS, as most would. She had the courage to keep looking for answers, knowing her own body well enough that each new diagnosis
Jun 04, 2015 rated it it was ok  ·  review of another edition
Jody Berger, at forty-three, sees a doctor about a minor tingling sensation in her hands and feet. One MRI later, she is diagnosed with multiple sclerosis and told to pick a drug and accept her fate. Instead Jody starts asking question, only to receive a different diagnosis from each specialist she turns to, from vitamin deficiencies to metal toxicity to depression. While the intent of the book may have been good, the information can be misinterpreted and lead someone to question all physicians ...more
Ms. Reader
I received this book on Goodreads in exchange for an honest review....

I honestly don't know how to think of this book. It's heart-breaking and gut-wrenching and scary, to think that something like that can happen to you. At the same time, I think this woman placed way to much blame on the healthcare system when everyone knows that nothing is perfect, that every system is flawed and bound to make mistakes. She just seemed to desperate to hear what SHE wanted to hear, and not what anyone else was
Caitlin Janke
Jun 18, 2014 rated it really liked it  ·  review of another edition
Shelves: netgalley
I received this book through Netgalley
I don't read non fiction books very often but I have been having my own adventure in healthcare land so I was very interested in this book. I found it very In depth, the author tells you about her life before her illness hit and let's you follow her story through her time with it. I also found the difference in how the health car works in the states work compared to the country I live in. This is an over all interesting book and I enjoyed it. I think most
Shirley Smith
Jan 23, 2016 rated it really liked it
A pretty straight-forward personal story about developing a more skeptical view of mainstream healthcare. It was an interesting glimpse into what reactions, and options, you might have if you receive a diagnosis you simply don't believe. Perfectly fine writing--she identifies herself as a sports journalist, and her experience shows--but sometimes she lost me a bit as I tried to figure out what she wanted her book to say. I suppose that's because it was a chronicle of a journey with no tidy ...more
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