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A Twisted Fate: My life with Dystonia

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4.58  ·  Rating details ·  12 ratings  ·  5 reviews
Brenda Currey Lewis was a typical, active child. But when she was seven years old her life changed dramatically. Generalized dystonia (dystonia musculorum deformans) turned her muscles against her. This rare neurological movement disorder causes muscle groups to tug and twist the body into abnormal postures. Brenda started walking on the outer edge of her right foot, and ...more
Paperback, First, 242 pages
Published November 6th 2013 by FriesenPress (first published November 1st 2013)
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Average rating 4.58  · 
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Debbi Mack
Mar 10, 2018 rated it it was amazing
An excellent and inspiring story. As a writer, I can fully appreciate how hard it must have been for the author to write this. But I'm so glad she did.

Everyone should read this book, because more people need to be made aware of dystonia. Plus the story is remarkable.
Elisa Cass
May 13, 2015 rated it it was amazing
Brenda Currey Lewis shares her poignant battle with the monster known as Dystonia. Having gone to high school with Brenda, I realize in hindsight, how she suffered in silence yet with profound grace, courage and always a smile. It breaks my heart but it makes me want to do more for others. Brenda's story will raise your awareness about persons with disabilities. After reading it, you will be compelled to look disabled persons straight in the eye with a comforting smile, and acknowledgement, ...more
KT
Mar 10, 2016 rated it it was amazing
An honest, down to earth book about life with the neurological condition dystonia. Well worth reading for those who are affected by dystonia whether it is as the person with it or friends and family or just for those who want to know more. it gives an accurate description of how it is. Great read!
Neena
Jul 24, 2019 rated it it was amazing
Recipient of the 2001 Dystonia Medical Research Foundation’s Courage Award, Brenda Currey Lewis’s account of her life as Dystonia patient is both interesting and courageous. When seven-year-old Lewis suddenly started walking on the outer edge of her right foot, she had no idea her life was going to change forever. After being diagnosed with Generalized dystonia (Dystonia Musculorum Deformans, a rare neurological movement disorder that causes muscle groups to tug and twist the body into abnormal ...more
Vanessa Pillay
Apr 03, 2019 rated it it was amazing
This book was lent to me by a friend who met the author and recommended I read this remarkable story. I didn't know very much about dystonia, besides 'involuntary muscle movement' and I didn't realize the impact it could have on bones and posture etc. I learned so much about dystonia, but also about how the healthcare system has changed in the last 40 years and how the lives of people with disabilities have changed.
Kelly
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Aug 31, 2019
Mike
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Jan 30, 2015
Brenda Lewis
Sep 23, 2016 rated it it was amazing  ·  (Review from the author)
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