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Wordjazz for Stevie: How a Profoundly Handicapped Girl Gave Her Father the Gifts of Pain and Love
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Wordjazz for Stevie: How a Profoundly Handicapped Girl Gave Her Father the Gifts of Pain and Love

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it was amazing 5.0  ·  Rating details ·  8 Ratings  ·  4 Reviews
How could a girl born with a genetic defect - who later suffered brain damage leaving her blind, epileptic and physically handicapped, and who lived only eight years - change the world? Wordjazz for Stevie is a letter written to Stevie by her father after she had died to try to explain to her (and the world) the meaning of her life. This is a book that everyone should read ...more
ebook, 188 pages
Published November 16th 2010 by Blacksmith Books
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Hue
Feb 12, 2012 rated it it was amazing  ·  review of another edition
"Wordjazz for Stevie" is a love letter from author Jonathan Chamberlain to his Down Syndrome daughter, Stevie, who lived to the age of eight and taught his parents the true meaning of life, love, happiness, pain. Stevie's short life, wholly dependent on her parents and medical devices for basic biological survival, changed the lives of those who loved her, by making them better human beings.

Stevie's parents did not get the amniotic fluid test for Down Syndrome and only discovered her medical con
...more
Susan
Oct 21, 2011 rated it it was amazing  ·  review of another edition
Jonathan Chamberlain writes the perfect tribute to his late wife and daughter in this heart-wrenching memoir. Set mostly on a small outlaying island of Hong Kong, the story is nothing like the romantic Hong Kong Chamberlain paraphrases from Prizzi's Honor: "Let's forget about all this. Let's get away. Let's go to Hong Kong and change our names and disappear." (p. 22) But the book is a love story nonetheless.

His world suddenly changes when his wife gives birth to their first child and she's born
...more
Leila Summers
Mar 04, 2012 rated it it was amazing  ·  review of another edition
Shelves: memoir
“Even now when you’re not here to be hugged I close my eyes and wrap my arms around a volume of space and pretend you’re in it and that I can feel your weight.”

This heartfelt memoir is a beautifully written tribute from the author, Jonathan Chamberlain, to his late eight-year-old daughter, Stevie. Stevie was born with Down Syndrome and when she was only six months old, suffered serious complications after heart surgery, which left her severely handicapped. Through all her difficulties (of which
...more
Chris Thrall
Mar 06, 2012 rated it it was amazing  ·  review of another edition
"Wordjazz for Stevie" is Jonathan Chamberlain's deep and moving tribute to his late eight-year-old daughter, a candid and beautifully written soliloquy born out of the pain of loss but conveying hope, love, happiness and insight.

Stevie arrives in the world when expat Jonathan and his Chinese wife are living on a quiet island off Hong Kong. Although shocked to learn Stevie has Down syndrome, Jonathan and Bern immediately accept the additional challenges this presents, challenges that increase sig
...more
Tom Carter
rated it it was amazing
Jul 22, 2010
Jonathan Chamberlain
Mar 13, 2012 rated it it was amazing  ·  (Review from the author)  ·  review of another edition
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657510
I am a writer who has been hijacked by life. When my daughter, Stevie, exploded into my life with all the problems she had to cope with I ended up founding two charities for children with developmental disabilities (and wrote a memoir of this time in my book: Wordjazz for Stevie) - then when my wife was diagnosed with cancer I had a new battle on my hands - and this led to a series of cancer books ...more
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