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Against Their Will: The Secret History of Medical Experimentation on Children in Cold War America
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During the Cold War, an alliance between American scientists, pharmaceutical companies, and the US military pushed the medical establishment into ethically fraught territory. Doctors and scientists at prestigious institutions were pressured to produce medical advances to compete with the perceived threats coming from the Soviet Union. In Against Their Will, authors Allen H
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Hardcover, 288 pages
Published
June 25th 2013
by St. Martin's Press
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Start your review of Against Their Will: The Secret History of Medical Experimentation on Children in Cold War America

This book would rate 3 1/2 stars, but I'm giving an extra one for the excellent (and extensive) bibliography and footnotes.
Since I've delved – more deeply than is wise if one doesn’t want to lose all faith in society – into the history of US eugenics programs and since I already knew about the dubious legacy of Drs. Freeman, Watts, and Bender from college psych classes, I didn't expect to find anything in this book to shock me. I was wrong. One has to wonder what sort of person can balance the ...more
Since I've delved – more deeply than is wise if one doesn’t want to lose all faith in society – into the history of US eugenics programs and since I already knew about the dubious legacy of Drs. Freeman, Watts, and Bender from college psych classes, I didn't expect to find anything in this book to shock me. I was wrong. One has to wonder what sort of person can balance the ...more

Don't read this book if you are sensitive to cruelty and ignorance.
It documents the experimentation on and medical treatment of people who had no rights or were unaware of their rights: prisoners, children in mental institutions, orphans, the poor and even trusting gullible educated adults.
The book includes testing of vaccines and medicines; radiation experiments; lobotomies, electroshock therapy and LSD "treatment" for mentally ill and/or mentally "disabled" people; use of non-approved drugs f ...more
It documents the experimentation on and medical treatment of people who had no rights or were unaware of their rights: prisoners, children in mental institutions, orphans, the poor and even trusting gullible educated adults.
The book includes testing of vaccines and medicines; radiation experiments; lobotomies, electroshock therapy and LSD "treatment" for mentally ill and/or mentally "disabled" people; use of non-approved drugs f ...more

There's a lot of really interesting information in this book, and it's a history that should be more well known. The writing in general is good, but the organization is bad and the writing is sometimes repetitive. Each experiment is also covered quite briefly, so be prepared to look for other books if particular issues grab you.
The title/cover is also a bit sensationalistic given how few experiments in the book actually had anything to do with the Cold War, and how much of it was devoted to othe ...more
The title/cover is also a bit sensationalistic given how few experiments in the book actually had anything to do with the Cold War, and how much of it was devoted to othe ...more

Not exactly Cold War era. Not exactly constructed concisely in a coherent or unified way. That being said, good research, good documentation and gives a peek into some of the live's affected and effected by experimentation, government run medical programs and our history as people in the health field.
My heart goes out to those lives in whom I have benefitted from vaccinations, medical breakthroughs and practices. It is from their sacrifice of quality of life, or sacrifice of life without permis ...more
My heart goes out to those lives in whom I have benefitted from vaccinations, medical breakthroughs and practices. It is from their sacrifice of quality of life, or sacrifice of life without permis ...more

This is a book that will make you think. What is the definition of human? When does the principle of the "greater good" prevail and who defines the term? What price are we willing to pay for the advancement of modern science and technology? The authors did an excellent job in this book exploring the motivations that drove researchers to use the methods they did and the bigger picture of a society that turned a blind eye. The book is divided into logical chapters by the types of experiments done
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Good book, well as good as a book could be about the use of vulnerable children in medical research could be. As someone who as worked in the research field (non-interventional, observational) I found it to be a very fascinating book that provides good history and context to the standards for research ethics we us today. Three disappointments though 1) as one reviewer said- the book was a bit repetitive or could have been organized a bit better, 2) by the title I was assuming it was focusing on
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The title of this book intrigued me so much that I requested it through the Inter-library Loan program of my local library. When the book arrived, I started reading it immediately - but this book really made me angry.
How could the medical community use children as research guinea pigs? Why did no one stand up and say, "this is wrong?" What was so important that harming children most in need of protection became routine? It's really hard looking at what happened in these clinical trials and not a ...more
How could the medical community use children as research guinea pigs? Why did no one stand up and say, "this is wrong?" What was so important that harming children most in need of protection became routine? It's really hard looking at what happened in these clinical trials and not a ...more

High-impact in its catalog of dehumanizing medical research that exploited institutionalized, often disabled children for almost a century (as far as documentation presented here), and with a valuable list of source notes. The writing leaves a lot to be desired, some experiments are vaguely described, the authors often lapse into stigmatizing language of the sort they ostensibly deplore, and the higher-level arguments/analyses are weak or superficial -- therefore it earns a place in my "painful"
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A very interesting look at the experiments performed in the United States in the pursuit of vaccines, cures, studies, and race to invent/prevent possible biological weapons. Some truly horrible things have been done to our orphans, psychiatric patients, prisoners and unwitting participants. What do we do? Testing must be done, but never on those who are unable to make choices for themselves. Most of the testing has moved overseas where FDA and regulations do not reach. It is a sad business.

What has happened in these institutions to those who don't have a voice...how terrible! Good to know all this and have awareness so this doesn't happen again.
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A very interesting book. Lots of things I never knew.
I understand the need for human subjects when it comes to medical testing, and the breakthroughs that were made because of some of this testing were historic, but the way it was conducted without permissions from relatives or parents or guardians of the children and adults institutuionalized at the time is unforgivable. Children and adults were often institutionalized because of the stigma attached to having a "feebleminded" or "problem" chil ...more
I understand the need for human subjects when it comes to medical testing, and the breakthroughs that were made because of some of this testing were historic, but the way it was conducted without permissions from relatives or parents or guardians of the children and adults institutuionalized at the time is unforgivable. Children and adults were often institutionalized because of the stigma attached to having a "feebleminded" or "problem" chil ...more

One of the most disturbing books I have ever read. I knew about unethical psychological studies, the Tuskegee airmen 'experiments' and the forced sterilization programs targeting the poor in the south, but I had no idea about the experiments done on institutionalized children, pregnant mothers, radiation studies on infants, cruel studies on those with cerebral palsy... The litany of horrors presented here are well researched and thoroughly horrifying; on par with Japan's Project 731 and Nazi med
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Three stars-- possibly 3.5. There is a lot to like about this book-- the research is in depth and fascinating, the personal stories horrifying, and the lengths gone to cover up what occurred in medical research over the last century very disturbing. That said, the title is misleading to a degree. The book is much larger in scope than just the Cold War era, with history delved into as far back as the late 19th century. The history is important, and interesting to read; however, it takes away from
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Sadly, a terrible but necessary subject to discuss in America's recent past. I naively thought most of these atrocities happened in Europe during the Nazi regime, but unfortunately that is not the case. In fact, despite the creation and knowledge of the Nuremberg Code, many physicians felt that such restrictions did not apply to them or their research. Granted, the Cold War mentality is significantly to blame for many of these failures, as is an under-appreciation of handicapped human life, but
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I wish everyone would read this. The true, sad history of human experimentation and eugenics - where? Nazi Germany, right? Nope... and if you think babies and developing nations are a much better substitute for asylums and orphanages or that doctors don't succumb to paternalism anymore you don't need to read it- you're part of the problem.
A very important, well-sourced book with the stories of real doctors and the lengths they went/go to in the name of science, including interviews with some who ...more
A very important, well-sourced book with the stories of real doctors and the lengths they went/go to in the name of science, including interviews with some who ...more

A large amount of information is collected and presented yet there is no coherent structure to the book. The mataerial lends itself to numerous topics; evolution of human rights, the history of modern medicine, the cold war, etc yet there is very little of this to be seen here and instead you have a recitation.

For me - a very difficult read due to a personal level. It was rather intense, supporting many things I had suspected and revealed much more. Mixed emotions - damned if you do, damned if you don't.
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Very difficult book to read and finish. It's hard to believe this really happened.
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Featured on Science for the People show #241 on November 29, 2013, during an interview with author Allen Hornblum. http://www.scienceforthepeople.ca/epi...
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What an eye opener...all in the name of "medicine"!
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“The message of Microbe Hunters was clear: Great men like Pasteur, Reed, Theobald Smith, and Paul Ehrlich were a rare breed. But for all their skill, training, and dogged pursuit of that deadly microbe or magical elixir, their mission was infinitely complex, the challenges multifaceted, and the trail of disease and death a daily occurrence.”
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“It should be understood that doctors did not want to damage their patients—as a profession they were sworn to do no harm—but if they committed dastardly acts, they were more easily pardoned if something positive had come of the exercise. Experiments on humans were usually excused if the results of the study were substantial, the process had an element of science to it, and the physicians were correct in their expectations. 19”
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