Goodreads helps you keep track of books you want to read.
Start by marking “The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed” as Want to Read:
The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed
Enlarge cover
Rate this book
Clear rating
Open Preview

The First Year: Scleroderma: An Essential Guide for the Newly Diagnosed

4.18  ·  Rating details ·  11 Ratings  ·  3 Reviews
Scleroderma—a chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tract—is extraordinarily difficult to diagnose and can take a huge toll on the psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated ...more
Paperback, 320 pages
Published January 5th 2004 by Da Capo Lifelong Books (first published January 4th 2003)
More Details... edit details

Friend Reviews

To see what your friends thought of this book, please sign up.

Reader Q&A

To ask other readers questions about The First Year, please sign up.

Be the first to ask a question about The First Year

This book is not yet featured on Listopia. Add this book to your favorite list »

Community Reviews

(showing 1-22)
Rating details
Sort: Default
|
Filter
Iona  Stewart
Jan 28, 2014 rated it liked it
This book is extremely well-written and well-organized. It seems to deal with everything you could possibly want to know about scleroderma. Though I didn’t find anything about my own main symptom – my legs feeling completely blocked, which I read somewhere else was one of the symptoms.

The book was too focused on American conditions to my taste. There is a chapter about assembling your medical team. Firstly, in my town in this country – Denmark – it might be difficult to find even one GP who know
...more
Annelise
Mar 13, 2011 rated it it was amazing  ·  review of another edition
Being diagnosed with a rare dissease like scleroderma, learning that this might also be deadly dissease, AND a cronic dissease takes the breath from everyone. This book gives you down to earth information of your first year with scleroderma, how to cope with things, and what you must be aware of.

Things are not always easy.

This book helps you put words on feelings and worries. Can be used as an encyclopedia.
Sophie
Feb 24, 2011 rated it it was amazing
One of the first books I read after I was diagnosed. Extraordinarily helpful.
Amanda
rated it really liked it
Apr 27, 2017
Lenore Mickelson
rated it it was amazing
May 01, 2016
Annelise
rated it it was amazing
Aug 19, 2012
Daniel Hart
rated it it was amazing
Jun 19, 2015
Alison
rated it really liked it
Nov 09, 2014
Kim Deane
rated it it was ok
Mar 15, 2018
Tracy
rated it really liked it
Feb 08, 2015
Rebecca Frodge
rated it really liked it
Dec 04, 2016
Jennifer
marked it as to-read
Apr 25, 2015
Lynn Williams
marked it as to-read
May 09, 2015
Jamie Moore
marked it as to-read
Jul 24, 2015
Milan
marked it as to-read
May 16, 2016
Deb
marked it as to-read
Oct 01, 2016
Molly
marked it as to-read
Oct 11, 2016
Marian
marked it as to-read
Mar 09, 2017
Vesna
marked it as to-read
Sep 10, 2017
Cindi Tjelde
marked it as to-read
Nov 28, 2017
Susanne Schmidt
marked it as to-read
Oct 11, 2013
There are no discussion topics on this book yet. Be the first to start one »