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The Forever Fix: Gene Therapy and the Boy Who Saved It
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The Forever Fix: Gene Therapy and the Boy Who Saved It

3.85  ·  Rating details ·  165 ratings  ·  32 reviews

Fascinating narrative science that explores the next frontier in medicine and genetics through the very personal prism of the children and families gene therapy has touched.

Eight-year-old Corey Haas was nearly blind from a hereditary disorder when his sight was restored through a delicate procedure that made medical history.  Like something from a science fiction novel,

Hardcover, 336 pages
Published March 13th 2012 by St. Martin's Press
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3.85  · 
Rating details
 ·  165 ratings  ·  32 reviews

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Charlotte Larsen
Aug 20, 2017 rated it liked it
The Forever Fix by Ricki Lewis is a nonfiction, scientific novel, depicting not only the triumphs and success stories associated with gene therapy procedures, but the risks and tragedies as well. The entire book is centered around the story of young Corey Haas. Corey is just a toddler when his parents Nancy and Ethan begin to notice that something is not quite right. He stares directly into bright light bulbs without flinching, and always seems to walk into things without meaning to. Not only th ...more
Judie Dooley
May 03, 2012 rated it it was amazing
I won this book on goodreads. This book was awesome. I learned so much about gene therapy and the number of diseases it is helping to cure. The little boy Cory is so brave to have gone through so much to get get his sight back.
Also it told about all the other children that it helped , and unfortunately the ones that had bad outcomes. It was well written and I was able to understand all the procedures etc with no trouble. I think every eye surgeon should read this book. Thank you for allowing me
Apr 01, 2012 rated it it was amazing
Enjoyed reading this book about gene therapy and how it helps and can help so many children.
Melissa T
*Please note I won this via Goodreads Giveaways.*

This book is really well written. Being that it deals with gene therapy, it has a lot of scientific background in it. I've taken biology a few times. Once in high school, once when getting my BA, and once when going back to school to get an associate's degree to be able to do a work exchange program. I took it so many times not because I didn't get it, but because it is easiest science to digest, IMO. So. I learned multiple times over about brain
Heidi Hisrich
Oct 18, 2017 rated it it was amazing
Absolutely incredible book. Anyone interested in medicine and treatment of diseases (especially genetic diseases) or in how new treatments are researched and approved should definitely read this!
Abbie F
Apr 06, 2019 rated it really liked it
The beginning was a bit slow, but the ending was thrilling!
Nigel Hey
Aug 13, 2012 rated it it was amazing
If, like me, you grew up believing that scientists can't write, here's the proof of how wrong one can be. This is a science book so skilfully constructed that it reads like a novel - except that it is a true story about an undeniably important subject, the promise of gene therapy.

Here is an author whose writing skill is such that she can take on a difficult subject and blend it with real-life, factual information so deftly that you're likely to forget you're reading a book about cutting-edge sci
May 07, 2015 rated it it was ok
For a few years now I've been curios to learn more about gene therapy-- not specifics related to treatment, which would mean little to me since I'm not a scientist. Rather, I'm interested in the concept. Diseases that originate in the function of the cell, like diabetes, cystic fibrosis, AIDS, leukemia, and certain neurological disorders, can be treated by "reprogramming" the function or operation of those cells. (This is contrasted to a drug therapy, which focuses on the symptoms of disease.) W ...more
Aug 26, 2012 rated it liked it
fairly readable account of the false starts and subsequent improvements with gene therapy, centering on story of a young, nearly blind, boy whose vision was improved dramatically, and to a lesser extent on other anecdotes.

The nuances of the preclinical animal research were hard for me to follow, and perhaps the sense that this may be true of many readers was the motivation for including so many human interest stories. Not really a seamless fit, though, in that the one has almost nothing to do wi
Aug 14, 2013 rated it really liked it
This review has been hidden because it contains spoilers. To view it, click here.
E.E. Giorgi
Apr 19, 2014 rated it it was amazing
As a disclaimer I should say that genetics is part of what I do at work, even though I don't work on gene therapy in particular. But aside from the topic, which I knew I would enjoy, I loved Dr. Lewis's writing and the way she effortlessly folded all the science into the narrative. I am grateful to Dr. Lewis because through this wonderful book she humanized scientific research, giving a voice to the struggle of not just one, but many families, and she gave a voice and face to the doctors and the ...more
Jul 31, 2012 rated it really liked it
I won this book through the Goodreads Firstreads Book Giveaway program and I am required to disclose that in any review as part of the terms and conditions.

Now that we have that out of the way. I can honestly say that I learned a great deal about Gene Therapy and the ways that it is currently being used as well as the potential uses for the future. Well written and researched as well as being an easy read, even if it was a little slower pace than what I am used to being a predominately science f
Aug 23, 2012 rated it really liked it
This book nicely delineates the course and purposes of clinical trials, especially those for gene therapies. It relates the highs and lows of the last 20 years in genetic research. I learned about some rare genetic conditions that were new to me as well as some that were more familiar. As a technical writer myself, I would give the author props for clear (if not concise) writing, though occasionally the narrative meandered and it could have been better formatted. But don't let my nitpicking stop ...more
Feb 07, 2014 rated it it was amazing
Fascinating! I learned so much about gene therapy! Its beginnings, successes, failures and applications in the future! Written by a geneticist who is able to make all the technical jargon understandable to the layperson. She also shares stories of families of people with different types of genetic diseases both rare and more common. I highly recommend this book!
Emily Dentler
Apr 29, 2012 rated it it was amazing
Shelves: first-reads
Absolutely loved this book! As a biomedical engineer, I really appreciated the level of detail included in this story, yet it was not so technical that a lay person would not be able to understand. A great overview of the history of gene therapy, interwoven with personal details from people who have gone through the process.
Mar 02, 2014 rated it liked it
Good read about clinical trials and a wonderful story about a boy that was given his sight back by and investigator that I actually know! A bit heavy in the science at times but very interesting. A bit scary to know that all the diseases that are covered are out there and affecting so many.
Delaney Slattery
Jul 26, 2014 rated it it was ok
I had to read this book for my biology class and I was dreading it at first. The farther I read the more intrigued I became. The story became more like a story and less like a textbook. Great book for any biology/genetics lover!
Mar 17, 2012 rated it it was amazing
Shelves: giveaway-wins
I really enjoyed reading this book. Not only did I learn a lot about gene therapy but this book actually caught my attention and I finished it in one day. It took me a while to actually start reading it because I was always so busy but now I wish I could of read it a long time ago!
Jim Walker
Jun 17, 2013 rated it really liked it
Wow. The stuff that goes on around us. The drama of lives devastated by rare, often unknown, genetic disorders. And the people who are driven to fix lives. The science, politics, economics, and dedication of people in an arena we rarely hear of. I found this book to be one of heroes.
Apr 18, 2013 rated it liked it
A very interesting topic about trying to help people with genetic diseases but I just couldn't get into the style of writing. "So and so tears up when she remembers the day that..." or variations of that were written so often, it got kind of tiresome.
Austin Larson
Apr 05, 2014 rated it really liked it
The history of gene therapy in the United States told via the stories of the individual patients in the trials. Manages to stay non-technical with compelling anecdotes about patients who died in gene therapy trials and those who were cured.
Apr 23, 2013 rated it it was amazing
Shelves: bahe-selections
Excellent look at the hisotry and science of gene therapy.
May 05, 2015 rated it liked it
A good look at the families behind the famous gene therapy clinical trials.
Robert Sparrenberger
Sep 19, 2013 rated it it was amazing
What an excellent book. Really interesting dealing with genetic disease and gene therapy.
The story moved along nicely and the author was accurate in the details.
Sep 15, 2015 rated it it was ok
Interesting content, but lack of an interesting plot, which reminds me why I don't like non fiction.
Apr 17, 2013 rated it liked it
A startling portrayal of pharmaceutical bioethics.
Sheryl Duane
Oct 22, 2012 rated it really liked it
This book choked me up quite a bit. It was a very interesting read !
Apr 11, 2012 marked it as to-read
As seen in Nature .
Aug 06, 2014 rated it it was amazing
Everyone who is interested in seeing alternatives to medicine which is practiced with money as the bottom line will find this book on the money.
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