Frontotemporal dementia update


My husband Randy Thompson has
behavioral variant frontotemporal dementia
If you are new to my blog, you can read his story HERE.

I love seeing him sitting out on our patio. And yes, these days are numbered as the temps are rising here in Phoenixhe's always saying "I think you're going to make me chicken with tomato sauce"I have never made such a dish 😊he recently lost the 20# he gained 4 years ago after his FTD diagnosehard to believe it was 4 years ago this monthbut the symptoms go back to 2011love the art pieces he brings home from his adult day carestarted touring memory care facilities. So hard to imagine that one day...he whispered "I love you"  the other day. Out of the bluehe's unable to carry on a conversation, instead repeats everything I sayso as you can imagine, it was a big dealhe is totally oblivious to the guys that are remodeling our master bathroom he loves taking our dog Koda for walkshe repeats over & over "That's Koda!" the entire time we're walkingRandy recently ate an entire bag of organic dog treats overnight, that I had emptied in a jar on the counterthey were not the usual 99 Cent store hard biscuit dog treatsso he thought they were people treatsI was pretty freaked out... but able to laugh about it now such an unexpected, heartfelt reaction to meeting his new granddaughter Cora Janeliterally took my breath away as I captured the sacred moment my beautiful Cora Jane. Our 6th grandchild. Mimi & Pop Pop are so blessed. love my letter board that I now call my memory boardscripture verses on the board that Randy loves reading every daymy latest memory verse ~ Romans 12:12 Randy just shaved his beard. Himself! (with my prompting) A miracle! Usually the neighbor has to hold his arms while I do it.ok, it ain't pretty, but hey, I'll take it! attended my first dementia workshop this month. So helpful, informative... and emotionalRandy is still so sweet... never angry, sad, depressed or argumentative I think it's because our life is very quiet, routine and predictable. which makes him feel safe, secure and happymy dear friend Alice captured this rare moment while visiting from PALove my husband so much... yet miss him terribly.


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Published on April 28, 2018 09:42
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