The Highs are Higher

“The highs are higher and the lows are lower.”

Peter and I used to say that a lot about having a child with Down syndrome. In recent years, the emotions around Penny’s experience haven’t been as extreme as they were in the beginning. I’ve never felt totally comfortable sharing the “lows are lower” experiences, and that is all the more true as Penny becomes an adult.

Still, the “highs are higher” days are worth sharing, and we just had one of those.

As a backdrop, I’ve kind of been dreading going prom dress shopping with Pen. I don’t particularly like shopping. I’m not good at it. And Penny’s petite frame makes it hard to find dresses that fit. Not to mention, who wants to shop for prom dresses with their mother?

But we had a plan. Over spring break, once we returned from a quick trip to Atlanta, we would find a dress.

Then, when we were in Atlanta, we mentioned the prom dress shopping plan to two young women who are friends and mentors for Penny. Alex and Caroline are both staff members of Hope Heals, and they were planning to spend an afternoon with Penny, with a trip to the aquarium and the ferris wheel and then head over to Caroline’s house for a girls’ night. It was already a dream-come-true moment, and then they lit up with the thought that perhaps I would be okay with them taking Penny dress shopping instead.

So. I went to the Civil Rights Museum, and they went to the mall. Not only did they spend the next three hours trying on dresses, they found the perfect dress. It is lovely and it fits and it met our budget and Penny felt celebrated and seen.

I saw the photos of them together and could have cried with joy and gratitude.

Yes, sometimes, the lows are lower. And sometimes the highs are higher too.

a friend and Penny try on prom dresses and dance in the changing room Penny and her Hope Heals camp friend, Caroline Young, take a selfie in front of a penguin exhibit Penny stands in between two friends from Hope Heals camp. Behind them is a gold friendship bracelets on the arms for four women Penny, wearing a pink prom dress, poses in the changing room mirror with two friends from Hope Heals Penny twirls a pink prom dress in the changing room Penny stands next to Alex Wolf, her Hope Heals friend. They are facing away from the camera and looking into an aquarium tank as a dolphin swims toward them Penny stands in between two Hope Heals friends. They are silhouetted against an aquarium filled with blue water and fish Penny smiles with her friend Alex Wolf

MORE WITH AMY JULIA:

WorkshopReimagining Family Life with DisabilityPrioritize Relationships

Subscribe  to my newsletter to receive regular updates and news. You can also follow me on  Facebook ,  Instagram , and  YouTube , and you can subscribe to my Reimagining the Good Life podcast on your favorite podcast platform. 

The post The Highs are Higher appeared first on Amy Julia Becker.

 •  0 comments  •  flag
Share on Twitter
Published on April 22, 2024 23:55
No comments have been added yet.