(1/3) “We’ve been fighting this for thirteen years....





(1/3) “We’ve been fighting this for thirteen years. Sterling has a brain tumor in the center of his brain where the optic nerves cross. It’s inoperable. Our lives center around keeping the tumor from growing. That’s what we do. We’re here today to pick up a new experimental medicine. Sterling’s had over one thousand seizures. I joke that this whole experience has made me an involuntary Buddhist. When you live in a world of one thousand seizures, you have no choice but to live in the present. You’re jolted out of your mind every few minutes. And you learn about compassion. Having a special needs child has opened me up to the compassion of other people. There are so many people who are willing to help. When we first discovered the tumor, I sent Sterling’s scans to every hospital. I can’t tell you how many doctors gave me their time and didn’t charge a thing. Zero billable hours. Can you believe it? It was like going snorkeling for the first time, and discovering a whole new world of color that I didn’t know existed.”


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Published on May 07, 2016 10:04
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