Silvia Corradin

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in Ivrea, Italy
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December 2010

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Mom to 3 boys, 1 in heaven, 2 on earth. My first son Alex (whose demise is most likely EB related) was stillborn at full term. After a miscarriage, I had my second son Nicky, who has the Recessive Dystrophic form of Epidermolysis Bullosa. My youngest son, Connor, is 100% healthy, and I never, ever take it for granted. I am an author, photographer, graphic artist, webmaster, blogger and more.

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Silvia Corradin My son inspires me most of all. I wouldn't be a writer if I didn't feel compelled to write about his life living with an ultra-rare condition. He's my…moreMy son inspires me most of all. I wouldn't be a writer if I didn't feel compelled to write about his life living with an ultra-rare condition. He's my hero, my inspiration, my all.(less)
Silvia Corradin Hi Bobby, I don't feel worthy of such statement, but as Robin Williams once said:"A hungry stomach, an empty wallet and a broken heart teach you the m…moreHi Bobby, I don't feel worthy of such statement, but as Robin Williams once said:"A hungry stomach, an empty wallet and a broken heart teach you the most valuable lessons in life". I do believe hardship builds our character and gives us a glimpse of what a little compassion and empathy can do. <3(less)
Average rating: 4.35 · 54 ratings · 11 reviews · 4 distinct worksSimilar authors
Butterfly Child

4.26 avg rating — 23 ratings — published 2015 — 4 editions
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Losing Alex: The Night I He...

4.37 avg rating — 19 ratings — published 2012 — 2 editions
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Living with Epidermolysis B...

by
4.33 avg rating — 9 ratings — published 2007 — 2 editions
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Special Mommy Chronicles

it was amazing 5.00 avg rating — 3 ratings — published 2006 — 2 editions
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Born Different

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Nicky was recently filmed by Barcroft TV (Truly) for one of their videos about people born with different conditions and disorders. Here’s his!

Nicky is not the first person with Epidermolysis Bullosa to be featured, here’s the other brave EBers that have been featured on this program.

There are many others and surely more to come! Thank you for y

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Published on April 29, 2021 17:15
Messages from the...
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The Code Breaker:...
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Beautiful Things:...
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Silvia’s Recent Updates

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Dancing on Dewdrops by Mark John Terranova
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3 Big Questions That Change Every Teenager by Kara Powell
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Les Liaisons dangereuses by Pierre Choderlos de Laclos
“Now, I'm not going to deny that I was aware of your beauty. But the point is, this has nothing to do with your beauty. As I got to know you, I began to realise that beauty was the least of your qualities. I became fascinated by your goodness. I was drawn in by it. I didn't understand what was happening to me. And it was only when I began to feel actual, physical pain every time you left the room that it finally dawned on me: I was in love, for the first time in my life. I knew it was hopeless, but that didn't matter to me. And it's not that I want to have you. All I want is to deserve you. Tell me what to do. Show me how to behave. I'll do anything you say.”
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Pierre Choderlos de Laclos
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Wisdom to Grow On by Chuck Acquisto
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7190
“Love never dies a natural death. It dies because we don't know how to replenish its source. It dies of blindness and errors and betrayals. It dies of illness and wounds; it dies of weariness, of witherings, of tarnishings.”
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Anaïs Nin
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Messages from the Divine by Sara Wiseman
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What Happens When I Die? by Bill Wiese
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Becoming a Seriously Happy Special Needs Mom by Linda Bennett
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My American Dream by Lidia Matticchio Bastianich
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The Code Breaker by Walter Isaacson
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More of Silvia's books…
“Come to think of it, I could not even think of a movie or TV shows where they had a baby die, with the sole exception of a couple of episodes of “Little House on the Prairie” and perhaps soaps. I was beginning to understand this was truly “the” unspeakable loss, “the” invisible loss, a loss so great nobody wanted to talk about it; a loss so inconceivable and so horrible that many people declared it as being the most overwhelmingly painful experience of their life; the death of which they were least prepared for. I was beginning to understand. My grief was colossal and all-encompassing. No loss is more difficult to accept and feels more unnatural and less understood”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“Thinking back, it was such a surreal day; when I wasn’t sitting or crying I slowly paced the house like a zombie, waiting and weeping. I did not watch TV, read or listen to the radio. I was just ‘there’, thinking too much. Our old life, the one that included and was planned around the son we were fervently awaiting, was over. Our new life, the one where we had to learn to live without him, had not yet begun. We were in limbo. He was gone but he was with us. Was I still pregnant? I surely looked pregnant, but my baby was no longer alive inside of me, and I carried him inside of me not because of courage or dedication, but because I had to.”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“There was no cure for Recessive Dystrophic Epidermolysis Bullosa, there was also no known treatment, and no drug that improved the condition, not even an injection or medication to give him weekly or daily that would ease the symptoms. Absolutely nothing, zero, zilch.”
Silvia Corradin, Butterfly Child

“Thinking back, it was such a surreal day; when I wasn’t sitting or crying I slowly paced the house like a zombie, waiting and weeping. I did not watch TV, read or listen to the radio. I was just ‘there’, thinking too much. Our old life, the one that included and was planned around the son we were fervently awaiting, was over. Our new life, the one where we had to learn to live without him, had not yet begun. We were in limbo. He was gone but he was with us. Was I still pregnant? I surely looked pregnant, but my baby was no longer alive inside of me, and I carried him inside of me not because of courage or dedication, but because I had to.”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“I was very upset at how his skin was peeling off so badly anywhere, but nobody gave it a second thought. They told me it was ‘normal’.
Of course this was far from normal. There was no way they could have known about EB (Epidermolysis Bullosa) back then considering the rarity of the disorder. The only way to diagnose EB it is through a skin biopsy, and they would need to suspect EB to send it to the correct lab. It would not be until Nicky was born 21 months later that every Doctor imaginable was all of a sudden extremely interested in seeing photos of Alex. “Oh yeah” the dermatologist that diagnosed Nicky and Doctor McGuire at Stanford said to me unequivocally, “Alex for sure had EB.” How EB could have caused his demise though is still a mystery. Doctor Marinkovich at Stanford told me that many babies with EB are indeed stillborn, but could not tell me why. At this point however, in the delivery room, we were completely oblivious about EB and would remain so for nearly two years”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“Come to think of it, I could not even think of a movie or TV shows where they had a baby die, with the sole exception of a couple of episodes of “Little House on the Prairie” and perhaps soaps. I was beginning to understand this was truly “the” unspeakable loss, “the” invisible loss, a loss so great nobody wanted to talk about it; a loss so inconceivable and so horrible that many people declared it as being the most overwhelmingly painful experience of their life; the death of which they were least prepared for. I was beginning to understand. My grief was colossal and all-encompassing. No loss is more difficult to accept and feels more unnatural and less understood”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“I hate to say this, but I am still holding somewhat of a grudge at the people that could have come to the funeral but didn't, especially when they came up with some lame excuse how it was too sad or how they were afraid of cemeteries or whatever. No justification in the world could make up for you not being there when someone needs you. Period.”
Silvia Corradin, Losing Alex: The Night I Held An Angel

“I walked a mile with Pleasure;
She chatted all the way;
But left me none the wiser
For all she had to say.

I walked a mile with Sorrow;
And ne’er a word said she;
But, oh! The things I learned from her,
When Sorrow walked with me.”
Robert Browning Hamilton

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Christine Hatfield Thanks for being my friend


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