Zachary Zhao's Reviews > The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

The Boy in the Moon by Ian Brown

by
3720176
's review
Mar 18, 12

bookshelves: nonfiction-others
Read from February 28 to March 18, 2012

This is the true story of a father whose son (Walker) has one of the rarest genetic diseases that affects slightly more then 300 children around the world. As the father continues to grapple with his son's handicap and tries to make sense of his son's inner world, he also takes the reader on a journey of self-discovery.

It is hard for the reader to find the appropriate response to a story like this. The father is certainly not inviting pity as he shares his struggles with taking care of his son and eventually letting him go. Nor is he trying to induce guilt into the reader's heart by constantly attacking the broken healthcare system that makes his and his son's life more miserable than it already is. Ian Brown in this book is simply telling a story and his hope is that his readers would let down their guard, remove their preconceived notions and suspend any judgment. Simply listen and you will hear the cries of a father and a son.

I don' think I have ever gotten so misty-eyed reading a book. At the same time, the book asks some profound ethical questions about the social systems and the human condition. (E.g. Is "strength" the only virtue celebrated and encouraged by our society? Is our fear with the handicapped a reflection of our fear with our own weaknesses (and death)? Someone with Walker's disease would not have survived fifty years. In that regard, is modern medicine a blessing or a curse? Has technological advancement gone way ahead of social development?) These are the questions that the reader has to think about even as he or she experiences the intense emotionality of the story.

Sign into Goodreads to see if any of your friends have read The Boy in the Moon.
sign in »

Reading Progress

03/16/2012
61.0%

No comments have been added yet.