Petra X's Reviews > The Immortal Life of Henrietta Lacks
The Immortal Life of Henrietta Lacks
by Rebecca Skloot (Goodreads Author)
by Rebecca Skloot (Goodreads Author)
This is an all-gold five star read.
Its actually two stories, the story of the HeLa cells and the story of the Lacks family told by a journalist who writes the first story objectively and the second, in which she is involved, subjectively. The contrast between the poor Lacks family who cannot afford their medical bills and the research establishment who have made millions, maybe billions from these cells is ironic and tragic. It has been established by other law cases that if the family had gone for restitution they would not have got it, but that's a moot point as they couldn't afford a lawyer in any case.
I have seen some bad reviews about this book. People who think that the story of the Lacks - poor rural African-Americans who never made it 'up' from slavery and whose lifestyle of decent working class folk that also involves incest, adultery, disease and crime, they just dismiss with 'heard it all before' and 'my family despite all obstacles succeeded so what is wrong with the Lacks?' I wonder if these people who not only totally can't see the wonderful writing that brings these people to life and who so lack in compassion themselves are the sort of people who oppose health care for the masses? As an extremely wealthy American tourist once put it to me, he had earned good health care by his hard work and success in life, it was one of the perks, why waste good money on, say, a a triple-bypass on someone who hasn't even succeeded enough to afford health insurance? That they were a drain on society, non-contributors and not the way America needed to go to move forward.
I don't think you can rate people by what they have achieved materially. Success depends a great deal on opportunity and many don't have that. Henrietta Lacks didn't have it and her children didn't have it, not even her grandchildren made much of a way for themselves, but the next generation, the great grandchildren - ah now they are going in for Masters degrees and maybe their children will be major contributors. The author intends to recompense the family by setting up a scholarship for at least one of them. All of us came originally from poverty and to put down those that are still mired in the quicksand of never having enough spare cash to finance an education is cruel, uncompassionate and hardly looking to the future.
HeLa cells have given us our future. They are the most researched and tested human cells in existence. All of us have benefited from the medical advances made using them and the book is recognition of what a great contribution Henrietta Lacks and her family with all their donations of tissue and blood, mostly stolen from them under false pretences, have made. Indeed one of the researchers who looks like having told a lot of lies (and then lied about that) in order to get the family to donate blood to further her research is still trying to get them to donate more. She's a hard-nosed scientist, with an excellent job and income and to her the Lacks are no more than providers of raw material.
Sometimes you can't make hard and fast rulings. No I don't think we should have to give informed consent for experiments to be done on tissue or blood donated during a procedure or childbirth - that would slow medical research unbearably. I don't think cells should be identifiable with the donor either, it should be quite anonymous (as it now is). However, there is only ever one 'first' in any sphere and that one does deserve recognition and now with the book, some 50 years after her life ended, Henrietta Lacks has it. Good on yer, Rebecca Skloot, you've done a good thing here.
Its actually two stories, the story of the HeLa cells and the story of the Lacks family told by a journalist who writes the first story objectively and the second, in which she is involved, subjectively. The contrast between the poor Lacks family who cannot afford their medical bills and the research establishment who have made millions, maybe billions from these cells is ironic and tragic. It has been established by other law cases that if the family had gone for restitution they would not have got it, but that's a moot point as they couldn't afford a lawyer in any case.
I have seen some bad reviews about this book. People who think that the story of the Lacks - poor rural African-Americans who never made it 'up' from slavery and whose lifestyle of decent working class folk that also involves incest, adultery, disease and crime, they just dismiss with 'heard it all before' and 'my family despite all obstacles succeeded so what is wrong with the Lacks?' I wonder if these people who not only totally can't see the wonderful writing that brings these people to life and who so lack in compassion themselves are the sort of people who oppose health care for the masses? As an extremely wealthy American tourist once put it to me, he had earned good health care by his hard work and success in life, it was one of the perks, why waste good money on, say, a a triple-bypass on someone who hasn't even succeeded enough to afford health insurance? That they were a drain on society, non-contributors and not the way America needed to go to move forward.
I don't think you can rate people by what they have achieved materially. Success depends a great deal on opportunity and many don't have that. Henrietta Lacks didn't have it and her children didn't have it, not even her grandchildren made much of a way for themselves, but the next generation, the great grandchildren - ah now they are going in for Masters degrees and maybe their children will be major contributors. The author intends to recompense the family by setting up a scholarship for at least one of them. All of us came originally from poverty and to put down those that are still mired in the quicksand of never having enough spare cash to finance an education is cruel, uncompassionate and hardly looking to the future.
HeLa cells have given us our future. They are the most researched and tested human cells in existence. All of us have benefited from the medical advances made using them and the book is recognition of what a great contribution Henrietta Lacks and her family with all their donations of tissue and blood, mostly stolen from them under false pretences, have made. Indeed one of the researchers who looks like having told a lot of lies (and then lied about that) in order to get the family to donate blood to further her research is still trying to get them to donate more. She's a hard-nosed scientist, with an excellent job and income and to her the Lacks are no more than providers of raw material.
Sometimes you can't make hard and fast rulings. No I don't think we should have to give informed consent for experiments to be done on tissue or blood donated during a procedure or childbirth - that would slow medical research unbearably. I don't think cells should be identifiable with the donor either, it should be quite anonymous (as it now is). However, there is only ever one 'first' in any sphere and that one does deserve recognition and now with the book, some 50 years after her life ended, Henrietta Lacks has it. Good on yer, Rebecca Skloot, you've done a good thing here.
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Cynthia
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rated it 4 stars
Jan 17, 2011 06:31am
It would be nice if we didn't need informed consent on experiments because believe me, there is a lot of ignorance out there when it comes to basic medical knowledge. And fear. Being in the medical field, we really aren't trying to kill people off sooner to get their body parts. But just try to explain that to someone highly emotional due to the impending death of a loved or not-so-loved one. I am about to go off on a whole other tangent, so I better stop now. Great review.
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Agreed, Cynthia. Unfortunately, we (scientific/medical/psychiatric professions) haven't been either as respectful or as forthright as we need to be. Going through the IRB process is tedious, but I sleep better knowing that my common sense about research is backed up by a local committee and federal policy.
I'm reading The Body Hunters: Testing New Drugs on the World's Poorest Patients and believe me Big Pharma's idea of informed consent is roughly the same as someone explaining quantum mechanics to me in a couple of minutes and then asking me to sign a paper saying I understood it. Would I sign? No. Would I sign if I was a poor Haitian and told I could get free meals every day I came to the test lab? Yes.
I'm sure I can get a copy of this book as soon as I can deceive my mother to go to a bookstore. Haha, bad child.
Kwesi 章英狮 wrote: "I'm sure I can get a copy of this book as soon as I can deceive my mother to go to a bookstore. Haha, bad child."Somebody has to be deceived to get into a bookstore?!?! What a foreign concept. ;-)
Great Review Petra X. Pardon me but can you put a link on where I can the review of the American you just referred.
"As an extremely wealthy American tourist once put it to me, he had earned good health care by his hard work and success in life, it was one of the perks, why waste good money on, say, a a triple-bypass on someone who hasn't even succeeded enough to afford health insurance? That they were a drain on society, non-contributors and not the way America needed to go to move forward."That part.
That is why we are called Ugly Americans. I cannot believe people can find themselves so superior to others just because they have had the breaks to have some money. This was a great book and I loved the Lacks family!
Nancy wrote: "That is why we are called Ugly Americans. I cannot believe people can find themselves so superior to others just because they have had the breaks to have some money. This was a great book and I lov..."I'm not an American. There are self-serving snobs in all nations, but the majority of people are good-hearted. Since the Lacks' day, the US has come all the way to Obama. Not ugly Americans at all.
Well, I am an American, and sometimes I feel we are pretty ugly, especially when I hear a story like that one. Please know that we are not all like that. Everyone deserves health care and a break. Believe me, if you lived in the South (where I was born and raised and which I love with all my heart) and heard the attitudes of so many people where I live, you would know why I say we are pretty ugly... I hear the hateful remarks about our President and the superior attitude of people just because their skin is white. I think we may be uglier than you know... But thank you for your comments...
Right now I am chatting to a friend from South Carolina who runs a medical centre and she's really great. Mind, she does echo your sentiments to some extent.
Oh there are lots of great people or I would have to move! But too many are so superior when they have no reason to be! We are all human no matter the color of our skin or the origin of our religious beliefs! And we all deserve to be treated with dignity.
Excellent review Petra. I'm well along in this book and am finding it to be everything you you describe. I also looked at your list '5 star plus some stinkers'. I know where I'll turn when I'm looking for a good book! Thanks.
butter be scotch wrote: ""As an extremely wealthy American tourist once put it to me, he had earned good health care by his hard work and success in life, it was one of the perks, why waste good money on, say, a a triple-b..."The man who said that to me was a tourist who was buying books in my shop.
Excellent review, and I agree with all of the points you are making. I greatly admired the book as well. I first heard of HeLa cells in a lecture from my first cell biology class. We were told the cells came from Helen Lane, just as Skloot describes it. My wife was told the same in her classes, a decade later (she in the mid-80s).
You might be interested in the current citation list for HeLa cells - peer-reviewed journal papers, nearly all of which used the cells in some or all of the experiments:
http://www.ncbi.nlm.nih.gov/pubmed?te...
The list is nearing 71,000 papers as I write this(!) A pretty incredible legacy for one person to leave to the world.
Jim wrote: "Excellent review, and I agree with all of the points you are making. I greatly admired the book as well. I first heard of HeLa cells in a lecture from my first cell biology class. We were told th..."
Thank you for this info Jim. Very interesting. It's actually over 72,000 now!
Thanks so much for your response, Petra. It is a staggering number of papers, isn't it!I really enjoyed your review - just looked over it again. One day, I will sit down and write one of my own.:)
Jim wrote: "It is a staggering number of papers, isn't it!I really enjoyed your review - just looked over it again. One day, I will sit down and write one of my own.:)"
All the discussions I was following stopped getting followed with the big changeover recently so I only find comments on reviews by accident, I don't normally take months to respond! Let me know when you review the book.
Petra X wrote: "All the discussions I was following stopped getting followed with the big changeover recently so I only find comments on reviews by accident, I don't normally take months to respond! Let me know when you review the book..."I will do, Petra, and thanks for the kind words! I have had many problems with notifications as well, and they do create some awkward and unfortunate situations.:)
Jim wrote: "Petra X wrote: "I have had many problems with notifications as well, and they do create some awkward and unfortunate situations.:) "Ditto. What's scary is that I don't even know what I might still be missing!
Lisa wrote: "Ditto. What's scary is that I don't even know what I might still be missing! "Yes indeed. Just what we all need, a little more anxiety in our lives, right?
My sense is that they are still tinkering with the notifications engine, because I see subtle changes in the way things come up. But it is certainly a problem - still.
Oh well. Nice to get messages through when we do get on the same page! And nice to hear from you, Petra and Lisa.:D
