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Jan's Story: Love Lost to the Long Goodbye of Alzheimer's

3.79  ·  Rating Details  ·  325 Ratings  ·  88 Reviews
Imagine hearing these words: "She has Alzheimer's."

Now imagine that "she" is vibrant, active, loving, healthy...and just fifty-five.

Acclaimed CBS News reporter Barry Petersen writes about hearing the unimaginable; what it meant, what it still means, what he did—and didn't do—and how this beautiful love story needs to be heard by the thousands of families who have alrea
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Published August 3rd 2010 by Tantor Media (first published June 15th 2010)
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Lawrence Danks
Jul 13, 2010 Lawrence Danks rated it it was amazing  ·  review of another edition
This book is the story of CBS News reporter Barry Petersen's wife Jan and their marriage and how it was impacted by her early affliction with Alzheimer's Disease. I learned about the book when the CNN Morning Show's anchor John Roberts interviewed Mr. Petersen. It was a poignant interview since Mr. Roberts' has had recent experience with Alzheimer's in his own family and that the men knew each other well from their work together on CBS.

The sub title, "Love lost to the long good-bye of Alzheimer
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Sawsan
Apr 20, 2014 Sawsan rated it really liked it  ·  review of another edition
مؤلم أن نفقد من نحب وهم ما زالوا معنا
قصة زوج يعاني وهو يرى زوجته تختفي بالتدريج من حياته
باري بيترسون - مراسل صحفي- يحكي عن زوجته جان وإصابتها بمرض الآلزهايمر, مرض يسلب ببطء كل ما يمتلك المريض من شخصية ومعرفة وذكريات ومهارات, لا يعاني منه المريض فقط ولكن تأثيره بيكون أكبر على عائلته والمحيطين به
يحكي "باري" عن ذكرياته وحياته مع زوجته, حبهم, أسفارهم, البهجة والسعادة التي أدخلتها "جان" في حياته, بدء ظهور أعراض المرض وتغيير الشخصية والحالة العقلية إلى الدخول في عالم النسيان
هو بيحكي أكتر عن نفسه, ا
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Terri Jacobson
Jul 29, 2014 Terri Jacobson rated it really liked it  ·  review of another edition
Shelves: nonfiction, memoirs
This is a book about how a husband deals with his wife's diagnosis at age 55 of early onset Alzheimer's Disease. It's an emotional and moving book. It really gives a first-hand picture of what it's like to be a caregiver for someone with dementia. I'm a professional nurse who worked in dementia care for the last 10 years of my career, and I also was the caregiver for my grandparents when my grandmother was diagnosed with A.D. when she was 93, and my grandfather nearly killed himself trying to ta ...more
Nour El-Shehry
May 07, 2014 Nour El-Shehry rated it really liked it  ·  review of another edition
قصة جان هي قصة المرض الذي يسرق الشخص من حياته وحياة من يحب وهو على قيد الحياة. الوداع صعب ولكن الأصعب أن ترى من تحب يذهب إلى عالم آخر. ينتقل مريض الأزهايمر من دور الحكيم الراعي إلى دور الضعيف الذي يحتاج رعاية طفل وهو يعيش في جسد كهل، حتى أن المرض يحول نظرة المريض من نظرة وقار إلى نظرة خالية من أي معنى.
أثارني كثيراً تساؤل باري ووالدة جان. لمذا علينا أن نحافظ على حياة مريض الأزهايمر؟ أليس من الأفضل أن نترك هذه الروح ترحل عن هذا الجسد؟ بالتأكيد من الصعب جداً أن نترك من نحب يرحل حتى لو كان مجرد جسد
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Diane
Oct 16, 2010 Diane rated it really liked it  ·  review of another edition
This was a hard book to read - especially since my biological mother died from Alzheimers. It touched a chord in me. There were times when I felt angry while reading this book. I felt the book was too much about Barry and not enough about Jan. But when I got to the end of the book and he wrapped up the story, I could better understand where he was coming from. The ending of the book is not the normal ending one would expect from this story. In fact, it was a bit shocking. But I feel empathy for ...more
ام علي
سيرة واقعية لحياة انسانة رائعة اسمها جان (اعجبت شخصيا بها كامرأة وعاملة وانسانة منظمة ومفعمة بالحيوية) حتى يأتي ذلك اليوم الاسود الذي تبدأ هذه المرأة في فقد توازنها وثقتها وذاكرتها لتغيب في دهاليز الزهايمر... حكاية حزينة بتفاصيل مشوقة خاصة الجزء الاول من الكتاب .. يرويها لنا زوجها باري الذي يكاد يفقد رغبته ف الحياة!!
!كنت قد قرات سابقا كتاب غازي القصيبي واضاف هذا الكتاب تفاصيل جديدة عن هذا المرض
Zainab Alrifai
يتحدث باري بيترسن مراسل شبكة أخبار سي بي اس في هذا الكتاب عن قصة اصابة زوجته جان بمرض الألزهايمر والمراحل البطيئة والسيئة جدا للمرض، وعن معاناته كمانح رعاية لشخص مريض، وبكثير من التبريرات لتخليه عنها في نهاية المطاف،
هذا المرض يلتهم الدماغ ببطء وباستمرار ليفقد الشخص المريض كل ما اكتسبه منذ ولادته بداية بالعقل والذكريات والقدره على الكلام والأحلام والخيال،
الألزهايمر المرض الأسوأ على الاطلاق..
Saber Jan
Jun 29, 2011 Saber Jan rated it really liked it
ما معنى أن يكون أكثر شخص تحبه في الحياة مصاب بالازهايمر ؟ ما معنى الحياة إذا كان أحب الأشخاص إلى قلبك لا يعرف من تكون بالنسبة له؟ كيف تعيش حياتك اليومية وأنت تقدم الرعاية لشخص مصاب الازهايمر ؟
,الازهايمر ليس مرض اليوم والليلة إنما مرض يظهر خلال سنوات من المعاناة والآالآم تستحق من يكتب عنها حتى يعلم كل إنسان أن العقل نعمة قد يفقدها في يوم من الأيام
كتاب رائع وأنصح الجميع بقراءته
Mona
Aug 17, 2015 Mona rated it it was amazing  ·  review of another edition
أعجبتني الرواية جرعة كبيرة من مشاعر الحب والألم على فقد حب هو كل شئ بالنسبة ل باري بيترسون بسبب مرض الالزهايمر الذي أصاب زوجته جان من النادر وجود أشخاص او عقلاء مثل الرجل الذي وهب جزء كبير من الحب والأخلاص لزوجه لم تعد تعرفه جيداً ولم تعد تشعر به ولكن يكفي شعوره هو بها يكفي حبه لها حتى لو كان كله ذكرى من الماضي ، الرواية سلبت عقلي بصراحتها وصدقها منحتها خمس نجوم لأنها تستحق كل كلمة فيها

أن كل التغييرات وحتى التي نتوق إليها تأتي مصحوبة ببعض الكآبة لأن ما نخلفه ورائنا جزء من أنفسنا، يجب أن نتخلى ع
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Jill Kalz
The voice felt honest and true, and I applaud the author for his courage at sharing his story. But "Jan's Story" suffers at times from a lack of focus, wandering farther away from the subject of the book -- Jan -- than it should. Despite the title, this book, to me, isn't truly "Jan's" story, but rather "Barry's" story, the internal struggle of a husband and caregiver. Nothing wrong with that direction, and the book succeeds as such, but the title's misleading. As someone who's been touched by e ...more
Paula
Jul 27, 2010 Paula rated it it was amazing  ·  review of another edition
Barry Petersen, tv journalist, exposes us to his innermost thoughts and emotions as he tells the intimate, forthright, and open story of his journey in the marriage to the woman he deeply loved. Sadly she developed "The Disease," Early Onset Alzheimers. Emotionally painful to read, it is a revealing account of The Disease and how its progression affected him -- as husband and caregiver -- his wife Jan, and their life together, and how he is moving forward. It is of particular interest to anyone ...more
حنينْ
Jan 07, 2015 حنينْ rated it it was amazing  ·  review of another edition
كنت مترددة في شرائه لأنه مترجم وأحسست بإن لغته بسيطة وفد أتمكن من قرائته باللغة الاصلية , لكن بالنهاية اقتنيته والحمدلله
الكتاب مؤلم يدخل القلب مباشرة لغته سهلة ولم تفسدها الترجمة , قد لا يصل لدرجة الاكتئاب لكنه يترك شيء في نفسك .. اذا كنت تعرف أحداً عزيزاً مصاب بالمرض التأثر والرعب يتضاعف خصوصاً لو كان حياً اطال الله في عمره و"صحته" .. جدتي مصابة بهذا المرض "عافانا الله وإياكم" وشفاها الله بقدرته
وصف الكاتب ممتاز لحالات تطوره
نظرة العين "الخاوية" المفتوحة فارغة بالذات محزنة , بعد أن كانو أناس اصحا
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Ellen Campbell
This is a heartbreaking true story of Barry Petersen's experience with his wife's early onset alzheimer's disease. Having experienced this with my father, it describes the helpless situation a loved one is in when dealing with this. Her gradual decline was so sad and what a sincere tribute to his beloved wife.
Sommer Cash
Nov 15, 2014 Sommer Cash rated it it was amazing  ·  review of another edition
Tragic what this disease does!

This was such a telling story. working in the field of care dedicating your love and compassion to the person suffering with the disease, we tend to forget how the spouse is handling the daily struggles of losing that person differently, more intensely daily, monthly, and yearly than anyone could ever imagine. this books gives you a very sad glimpse of that loss and the different stages in which it happens. It was intriguing and loving that I could not put the story
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جنى
Feb 25, 2014 جنى rated it it was amazing  ·  review of another edition
قصة جان. ورحلة وداع الألزهايمر الطويلة .
هي قصة زوجة مراسل أمريكي تصاب بمرض الألزهايمر في سن مبكر فيبدأ عقلها بالتخلي عنها ببطىء حتى تغدو جسد يهيم في الغياب بﻻ حول وﻻ قوة ..

يكتب زوجها - باري - عن الحب الذي جمعهما .. وبعض الذكريات عن الأماكن التي كان مراسل فيها بعيدا عن زوجته ..
محاولاته في محاربة المرض وانكاره لكل مايحدث لها. ثم عن فقدانها بالتدريج حتى النهاية ..

غالبا ﻻ افضل الكتب المترجمة لأنها تفتقد المشاعر حين تترجم ..
لكن في هذا الكتاب، أغدق بالمشاعر والعبارات الأدبية !
انه من تلك الكتب التي ح
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Karen
Jun 14, 2014 Karen rated it really liked it  ·  review of another edition
This book was very thought provoking and sobering. So many will get Alzheimer's and so many caretakers of Alzheimer's victims will be walking Barry Petersen's path. I am not sure which would be worse. To lose myself, to lose what makes me who I am, or have to watch a loved one slip away like that. My heart goes out to Barry and Jan. For anyone interested in Alzheimer's and the effects on the family, and for anyone just interested in the ways in which individual people cope with the heartbreak of ...more
Lucy Wightman
Jan 07, 2014 Lucy Wightman rated it really liked it  ·  review of another edition
Recommends it for: Anyone who suspects they might brush up against Alzheimer's
Recommended to Lucy by: My own searching
Shelves: memoir, non-fiction
Barry Petersen is a CBS News correspondent who lost his wife, Jan Chorlton Petersen, a former foreign correspondent for CBS television and radio, at age 63 to Early Onset Alzheimer's Disease. His brave and personal reporting chronicles the evisceration of Alzheimer's Disease not only on his stunning young wife, Jan, the patient, but on him, and all those connected to their lives.

The beautiful twist comes in the later sections of his book where he openly moves towards forming a new relationship
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Drew Danko
Jun 18, 2011 Drew Danko rated it it was amazing
This is a book I would not voluntarily read, but a family member asked me to and I'm glad he did. If you want to learn what it would really be like to lose the love of your life while being totally powerless to defend him or her read this book. If you want to learn more about Alzheimer's destructive, unrelenting march through someone's life, whether the victim or the caregiver read this book. If you want to learn what it really requires to be a long term caregiver read this book. And if you know ...more
Alison
Jan 15, 2011 Alison rated it really liked it
I found this book to be fascinating. There's been a lot of discussion about Alzheimer's and the hereditary chances of getting it. My mom is reaching the age where it could start to show up if she has it. I think my understanding of the disease has been a lot more rosy than perhaps it should be, and this book gave me an interesting perspective into someone's life as they deal with the changes in their loved one.

I think the biggest thing I took from this book was that I have an opportunity right n
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Laura
Jun 16, 2015 Laura rated it really liked it  ·  review of another edition
The sub-title of Jan's Story says it all: "Love lost to the long goodbye of Alzheimer's."

It seems inevitable that at some point almost every one will have their life impacted by Alzheimer's. The statistics in the book make that very clear: "At the moment, about 5.3 million Americans have Alzheimer's. Of those, an estimated 10 percent, or half a million, suffer Early Onset or other forms of dementia, which means those diagnosed with Alzheimer's who are under sixty-five. And projections from the
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Sue
Feb 04, 2016 Sue rated it it was amazing  ·  review of another edition
Excellent true story of Barry Petersen and his wife Jan. Their struggles as she is diagnosed with early onset Alzheimer's disease. How they cope with every twist and turn, Barry's struggles as caregiver and family anger against him as Jan descends deeper into the disease. Excellent read, one that will help inform and allow you to experience both sides of the marriage and its deep emotions in this terrible descent into hell! Sad but very informative. Definitely recommend reading this one.
Sally
Sep 15, 2010 Sally rated it really liked it
Shelves: memoir
I read the book, but it won't let me select that version...

A true story of a man whose wife developed Early Onset Alzheimer's at 55. I enjoyed hearing about the history of their relationship and his desire to take care of her. His honesty and courage in talking about hard things are commendable. However, I believe marriage is a lifetime commitment, and I was saddened by his choice to pursue another relationship. I know I have no idea how difficult his situation is, nor how much he might long for
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Jen
Nov 30, 2014 Jen rated it really liked it
CBS correspondent Barry Petersen begins losing his wife to early onset Alzheimer's when she is only 55.

This book is a story about an individual couple dealing with a medical tragedy, yet it raises interesting questions for any couple in a committed relationship. When, if ever, is okay to find fulfillment outside the relationship if one party cannot interact and react and make decisions in the relationship? When is the caregiver supposed to turn the brunt of the care to another party? After all,
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Ghizlane
انها قصة كاتب صحفي ناجح في قناة سي بي اس يقضي حياته في التجوال حول العالم، يتزوج من جان، يقضون أيامهم في التنقل بين بيتهم في طوكيو، و الآخر في الصين، و الآخر في أمريكا!! جان امرأة كلها حيوية و حياة، تصاب بدون أية أعراض سابقة بمرض الزهايمر في بداية الخمسين، مما شكل صدمة لزوجها ! لم يتصور الزوج سرعة تطور المرض و ضمور الخلايا في المخ و مدى التدهور السريع في صحة زوجته، ثم ينتقل من زوج يتشارك الحياة مع جان الى مقدم رعاية لا غير.
Bayan  Al ghannam
قصة يرويها ضحية الألزهايمر، باري صحفي أعتاد أن يكتب قصص حول العامل لكن هذه المره أختارة القدر أن يكتب مأساة إصابة زوجته جان في المرض.
في رأيي هو الضحية، نعم جان من اصابها المرض ولكنه هو من عانى فقدان الزوجة والصديقة بالموت البطيء، ليس هذا فقط بل فقد الروح والذكريات بينما لا يزال جسدها موجود.
يروي كيف دخل في مرحلهة إنكار لما تمر به جان في مراحل المرض الأولية ، ومن ثم المتاعب اليومية
التي عانى منها، مرورا بإطراره الى ادخالها مصحة وشعورة بالذنب تجاه المسألة بالكامل ، ولوم بعض الأصدقاء له تجاه بعض ال
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Angela Livingston
Aug 18, 2010 Angela Livingston rated it it was amazing
Jan's Story is as much a love story as it is a chronicle of the progression of Alzheimer's. This was one of the hardest books for me to read, not because it's difficult to read but because it just rips at your heart. Reading about Jan and Barry's life together before The Disease and the slow destruction of that life with its progression is gut-wrenching. Jan's Story reminds us to cherish each day and not take even the small moments we have with loved ones for granted. I highly recommend this boo ...more
e7san Rassam
Nov 28, 2014 e7san Rassam rated it really liked it  ·  review of another edition
الالزهايمر

قصه واقعيه لمراسل شبكة cbs
باري بيترسن

كيف كان اثر هذا المرض ع زوجته وكيف استطاع امضاء السنين وتعامله معها كمريضه وزوجه وعاشقه

رائع جدا
كم اود تكراره
Trish
May 10, 2012 Trish rated it really liked it
This is a book that everyone should read. At the rate Alzheimers is taking over, we all will know someone, be someone, or be the caretaker of someone with Alzheimers.

Ironically, the chapters were slightly redundant, but still very powerful. Barry and Jan's story hit me very hard. All the things you'll do someday, but that someday never came for them. She was only 55 when diagnosed with Early Onset Alzheirmers. All the life, vitality, and everything that made her Jan slowly drifted away. It is n
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Jeanne
Feb 17, 2011 Jeanne rated it liked it  ·  review of another edition
The second half of the book was definitely better than the first half. I found the book initially difficult to get into. It seemed to be more about Barry coping, rather than Jan's coping with this dreadful disease. However, as he walked through the various stages of a person with Alzheimer's, I found I could relate more to the book (especially since it mirrors much of what I am going through with a close relative.) Sometimes it was hard to understand why Barry chose to keep moving Jan from place ...more
Barbara
Feb 12, 2016 Barbara rated it really liked it  ·  review of another edition
A heartbreaking but well told story of what Alzheimer's takes away from the person affected by the disease as well as their loved ones. Told with frankness and love.
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