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The Scleroderma

4.33 of 5 stars 4.33  ·  rating details  ·  6 ratings  ·  3 reviews

Scleroderma—a chronic autoimmune condition that causes hardening, thickening, or tightening of the skin and attacks the heart, lungs, kidneys, and gastrointestinal tract—is extraordinarily difficult to diagnose and can take a huge toll on the psychological well-being of the individual. From the first moment of her diagnosis, author Karen Gottesman took charge and educated

Paperback, 320 pages
Published December 10th 2003 by Perseus Publishing (first published January 4th 2003)
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Iona  Main Stewart
This book is extremely well-written and well-organized. It seems to deal with everything you could possibly want to know about scleroderma. Though I didn’t find anything about my own main symptom – my legs feeling completely blocked, which I read somewhere else was one of the symptoms.

The book was too focused on American conditions to my taste. There is a chapter about assembling your medical team. Firstly, in my town in this country – Denmark – it might be difficult to find even one GP who know
Being diagnosed with a rare dissease like scleroderma, learning that this might also be deadly dissease, AND a cronic dissease takes the breath from everyone. This book gives you down to earth information of your first year with scleroderma, how to cope with things, and what you must be aware of.

Things are not always easy.

This book helps you put words on feelings and worries. Can be used as an encyclopedia.
One of the first books I read after I was diagnosed. Extraordinarily helpful.
Jennifer marked it as to-read
Apr 25, 2015
Susanne Schmidt
Susanne Schmidt marked it as to-read
Oct 11, 2013
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