Asleep: The Forgotten Epidemic that Remains One of Medicine's Greatest Mysteries

Asleep: The Forgotten Epidemic that Remains One of Medicine's Greatest Mysteries

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3.62 of 5 stars 3.62  ·  rating details  ·  363 ratings  ·  82 reviews
Another fascinating foray into medical history from the author of The American Plague

In 1918, a world war was raging, and a lethal strain of influenza was circling the globe. In the midst of all this death, a bizarre disease appeared in Europe. Eventually known as encephalitis lethargica, or sleeping sickness, it would spread across the world, leaving millions dead or l...more
Hardcover, 304 pages
Published March 2nd 2010 by Berkley Hardcover (first published 2010)
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Kristi
If you're at all interested in diseases, epidemiology, or even just scientific narrative this book opens up an amazing world of a disease that changed the way modern science regards the human brain. But just as quickly, this disease disappeared into medical history. This book chronicles not only its world-wide spread from the battlefields of WWI to the streets of New York City, but also discusses the history of literature that might hold clues of prior occurrences of the disease. I loved this bo...more
Ann
Feb 26, 2012 Ann rated it 2 of 5 stars Recommends it for: people interested in epidemiology, history of disease
I was disappointed in this book. I started it with high hopes, because the little I know about this "forgotten epidemic" indicated that it would make for fascinating reading. Encephalitis lethargica is now mostly remembered as a footnote in the history of Parkinson's Disease (described by Oliver Sachs in his book "Awakenings", but I was curious to know more about its orgin, its relation to the great Influenza Pandemic, and its sequelae. This book left me frustrated. It felt like the author was n...more
Evanston Public  Library
When most people hear the term sleeping sickness, images of the tropics, Africa, and mosquitoes come to mind. But as Molly Crosby explains in her thoughtful and measured book, a mysterious outbreak of an infectious disease with confounding and terrifying symptoms was also dubbed sleeping sickness mainly because sufferers would fall ill and sleep or half-sleep for a little as a few days or for as much as many months. Many succumbed to the illness literally dying in their sleep. Others awoke in go...more
Dee
Interesting. Crosby spends as much time creating the era of the 20's, especially in New York, as she does speaking about sleeping sickness -- encephalitis lethargica. She gives eight very graphic, very horrible examples of what happened to the people who caught it, and described the attempts of medicine to find its causes and a cure. She seems to agree with the thesis that the 1918 flu pandemic was somehow associated/causitory to the enchepalitis. No one has found the cause, even today. This typ...more
Talulah Mankiller
Ahem.

So we all know that I like diseases, right? I mean, I don’t enjoy having them and if you had one I would be quite sad for you, but I like reading about them. Because I am a ghoul. I’ve tried to come up with other explanations for my fascination, but that’s it: the Mankiller is a ghoul. Plain and simple. End of story.

What with being a ghoul and all, Molly Caldwell Crosby’s Asleep: The Forgotten Epidemic that Remains One of Medicine’s Greatest Mysteries definitely appealed to me. Because it’s...more
Peter Hayashi
I started with book with high hopes as the subject of the book is so fascinating and I have enjoyed a number of similar books. I was quite disappointed in this book however. My major complaint is that there was just a skimpiness of the story. There really was not much information about the epidemic and the disease in this book. Instead, we learn quite a bit (too much for my taste) about a couple of physicians, who studied the disorder and either set up or ran organizations that studied and treat...more
Sarah Beth
Asleep details the mysterious and alarming sleeping sickness that swept across the globe in the early twentieth century, and which still pops up in isolated cases today. Encepahlitis Lethargica kills 1/3 of its victims who never wake up, and permanently alters/led to the institutionalization of another third. Yet it remains a mystery, and a largely unknown one at that.

Unlike many dry non-fiction (I'm looking at you, The Emperor of All Maladies), this was an easy read. Part of that was due to the...more
Pam
Asleep is a scary book because the disease encephalitis lethargica is still with us. What could be worse than dying? Surviving this disease without a full recovery. Or thinking that you have recovered, only to find out later that you are slowly losing control of your body forever. This is a medical book that delves into the forgotten "sleeping sickness" disease that killed and effected millions of people in the 1920's and 1930's. I saw this book in the library the other day and remembered the bo...more
Cathy
I really wanted to like this book. It's my type of subject, it's an interesting disease.... but I just felt so disappointed. There was a lot of writing that I could've done without, mostly detailed descriptions of the weather, the sounds, the smells, the sights, the history of NYC, etc. I just wanted the book to cut to the story. I also didn't realize that it was going to almost be more a book about neurology than the disease itself, focusing more on the doctors than the patients.

I'm still real...more
Laura
I happen to catch an interview on BookTV wherein this author and Rebecca Skloot were the guest “interviewees”. Came away from that experience with a desire to read the books written by these two young women. In the case of Ms. Skloot, her book is a best seller [“The Immortal Life of Henrietta Lacks”]. This one is not as popular a read I guess. Mores the pity. Ms. Crosby has managed to write a piece of non-fiction that reads very much like a novel.

The “Forgotten Epidemic” which is the subject ma...more
Stella
Well written book about a forgotton epidemic that started about 1918 and mysteriously disappeared some ten years later. Encephalitis Lethargica or the sleeping sickness often followed a case of the flu. It caused its victims to sleep for weeks or months and left Parkinson's symptoms in the adult patients. Sometimes the patients became comatoes and never woke up or they died! In children, strange behavior symptoms followed a bout of the sleeping sickness. They threw tantrums, refused to eat, coul...more
Julie
So if I could stand the sight, smell, feel and idea of blood, I think I would have been a great doctor. Years of schooling doesn't frighten me, and hospitals don't give me the heeby-jeebies. School wasn't even too much of a downer for me. I love to research and try to figure out puzzles and look for patterns, and even talking with crazy people is interesting to me. Of course, I am a bit of a hypochondriac, and so when I read this book, Asleep, I wondered if I have not suffered from it, too. Fort...more
Bruce
Sometimes there is a spurt of research on a disease and then the novelty wears off. It seems to be the case with encephalitis lithargica aka epidemic encephalitis aka sleeping sickness. Throughout the ages outbreaks of this disease seem to have occurred as evidenced more recently in tales by Edgar Allen Poe among others. The effects of the disease are often devastating to those who survive. Their catatonic state has been likened to zombies and may well have instilled that idea in various legends...more
Alyssa A
Not bad...I do wish there had been more information about the disease and the research and progress made on finding out what causes it/how to treat it...but maybe the lack of information on those aspects is because of the limited amount that people WERE able to find out about it before it died out. As other reviewers have noted, there was more information about the sociological history of new York city than I was interested in. I am mainly using this book as a jumping off point...I'm excited tha...more
Holly
This is an interesting book about the disease encephalitis lethargica which occurred in epidemic proportions globally in the early part of the twentieth century. The book gives good background for the introduction of this disease and the mystery it presented to the medical and public health communities. It does a great job of stressing that the cause of the disease is still unknown and that the secondary symptoms, that often occur years later, can be devastating. However, the book spends a lot o...more
Pat
The flu pandemic of 1918 garnered much attention at the time; and since. The much lesser known epidemic of sleeping sickness that occurred concurrently was, and still is, a mystery in many ways. Crosby's very personal reason for exploring the subject of the under-reported and still greatly misunderstood epidemic encephalitis sprang from her memories of her grandmother; a survivor of the disease. Set against an imformative history of NYC; early medical practices and research, the most compelling...more
Alisa
Fascinating and well-written book; my only quibble is that there was too much about the doctor's personal lives and not enough about the patients and the disease itself. The most interesting thing? As I'm reading the symptoms/after-effects of this disease, I'm getting more and more freaked out by how similar it sounds to....zombies. Yes, really! Other than the whole "eating your brains" thing, this book could be about zombies. And on page 186, there was actually this:

"...zombie films may well ha...more
Paperclippe
The story and the information contained within was indispensable, clever, and enlightening. For anyone with a love of medical mysteries, this book is a must-read, but be prepared for a few off-putting anecdotes (for example, the claim that studies show that crimes do increase during a full moon, given without supporting evidence, when in actual fact all the studies and specials I have seen discount this face), a love of anachronistic language, and a bit of shoddy editing. Get past that, though,...more
Lorette
If you are a fan of Oliver Sachs, as I am, this is your type of book. This book alternates between case histories and factual narrative detailing "sleeping sickness," or encephalitic lethargica. There was an epidemic following the flu epidemic of 1918, hitting New York City particularly hard. 1/3 of patients died outright, 1/3 recovered, and 1/3 recovered, only to battle Parkinsonian trembling, personality changes, troubling neurological and psychological symptoms later in life. There was anothe...more
Shana
The author's writing is wonderful and she is a great storyteller and tthis story is eminently worthy of being told.
I devoured the book in spite of the fact after a couple of cases ( the book is organized by 7 case studies and biographies of the physicians associated with them) I realized that the build up and promise of more information within each section was rarely panning out to new knowledge. Now in all fairness a main reason for this is clearly that 100 year old patient case histories appe...more
Di
I was interested in finding out more about sleeping sickness as, although my (now deceased) grandmother had once experienced the disorder, I understood very little about it. Well, it turns out that to this day, even the medical community remains in the dark when it comes to the nature of encephalitis lethargica. Indeed, no one knows the true cause or how to treat this diabolical illness. This is without doubt a frightening notion. Yet, the world at large has chosen to forget the devastation it l...more
Dennis D.
Asleep is the engaging non-fiction account of the outbreak of an unusual type of encephalitis known as encephalitis lethargica, a variety of "sleeping sickness." It's often characterized as a 'forgotten' illness, because as devastating as it was from about 1918 to 1927, cases now are infrequent and isolated, and there have been no further epidemics. The disease got some recent attention as the result of the memoir Awakenings, by Oliver Sacks, which was made into a movie starring Robin Williams a...more
Melinda
I picked this book up at Costco because it sounded interesting, Awakenings is one of my favorite movies and I needed something to read while I stood in line. This is a very well-researched book about a disease, Encephalitis Lethargica (Sleepying Sickness), and how it has baffled the medical field for decades. The book kept me interested throughout. I only wish more time had been spent in detailing the individual cases. An interesting note is that the author's grandmother was a survivor of the di...more
Leslie
Crosby's exploration of the Encephalitis lethargica epidemic of the early 20th century is fascinating. Crosby's prose is easily accessible, and her examination of this neurological disease uses medical case studies, history, and biography to draw a portrait of how the epidemic came about and what its effects were on its victims and society. Fans of Sacks' Awakenings will especially appreciate this book as Crosby refers to Sacks' work with a group of survivors of the epidemic frequently, and inde...more
Lucy
A solid, if slim overview of the forgotten sleeping sickness epidemic of the teens and '20s. The writing is engaging, if on the flowery side on occasion. The conclusion is unsatisfying, if only because this affliction remains mysterious,so there's not a lot to say. One half star removed for the writing style, the other because I was half-seriously planning to write a similar book eventually!

Read this and Oliver Sacks' "Awakenings."
Kdooley
A really interesting book about "Sleeping Sickness." Not good if you're a hypochondriac, since the crux of the issue is that we still don't know what causes it or why or in what circumstances. I liked the way this book was written a lot, though I could have done with a little less detail regarding the physicians and a little more detail regarding the patients. I know that was probably hard to come by, though.
Jessica
I really should have gone into epidemiology. I find disease and the way it spreads fascinating. This book was really interesting, but quite gruesome in places (as in the account of one girl who started gouging out her own eyes and pulling out her teeth, etc.) I'm definitely glad sleeping sickness seems to have disappeared for the moment. It doesn't sound like a pleasant disease.
AJ
I enjoyed this book, but I didn't see it as a biography of an epidemic so much as a biography of early 20th century New York with some case studies of encephalitis lethargica thrown in. In fact, I thought the history and random facts about New York were more interesting than the point of the book!

It's definitely not the best epidemic book I've read (far from it), but since it is one of the only accessible books about encephalitis lethargica I enjoyed learning more. Of course, the source materia...more
Ayse
I have always been fascinated by the 1918 flu pandemic, and I was really interested to read this book. But it is in a weird way more a walking tour of New York City between 1920 and 1930 than a history of the disease. The organization is really strange, with stories jumping around in time and sudden shifts in perspective, and lordy, the number of descriptions of people walking to work!
Lauren
It was hard to get into at first because of the way the author jumped around so much. I put it down as what little I had read, scared me. I - being determined to always finish what books I pick to read - picked it back up today. Not only did it delve into the story behind this unusual and forgotten illness, but it also gave histories and politics of the time (although I still feel the author jumped around too much and some of the histories weren't necessary). You learned of how Neurology took a...more
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Asleep: The Forgotten Epidemic that Remains One of Medicine's Greatest Mysteries (Paperback)
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Molly Crosby is a best-selling author and journalist. Her first book The American Plague: The Untold Story of Yellow Fever, the Epidemic That Shaped Our History was published in November 2006 by Berkley Books, an imprint of Penguin, USA. The New York Times hailed it as a “first-rate medical detective drama,” and Newsweek called it “gripping.” The book has been nominated for the Barnes & Noble...more
More about Molly Caldwell Crosby...
The American Plague: The Untold Story of Yellow Fever, the Epidemic that Shaped Our History The Great Pearl Heist: London's Greatest Thief and Scotland Yard's Hunt for the World's Most Valuable Necklace

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