24th out of 29 books — 22 voters
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"Beyond Breathing" is a story of a mother's loss of her 13 year old daughter, Jena, to Cystic Fibrosis, a fatal genetic disease. Her journey takes you from unfathomable heartache to love and understanding of life's realities. Through her journey she learns that life lessons come from her children and the beauty of living and the power of love. In the span of one year she l ...more
Paperback, 144 pages
Published March 25th 2009 by iUniverse Star
(first published October 1st 2008)
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(showing 1-30 of 62)
Margarete Cassalina shares her heart wrenching and captivating story about the loss of her 13 year old daughter, Jena to Cystic Fibrosis. This book is a very intimate and very real look into Margarete’s life and that of her family. I appreciated the honest description of her grief and of her coping mechanisms. She paints this story with a very raw and very honest brush. Margarete does a fantastic job of showing you exactly what her life was and is, all the ups and downs. She is a remarkable woma ...more
I never would have run across this book if my brother hadn't loaned it to me -- he knows the author through work. It's the story of a mom's journey through her daughter's battle with cystic fibrosis and the mom's grief after her daughter's death. It's a very quick read (maybe 2-3 hours) and the writing is only so-so, but it is worth reading. It's a very touching story and I defy any mom to get through it without tissues. If you'd like to borrow it from me before I return it to my brother, just l ...more
Terribly sad memoir by a mother who lost her daughter to cystic fibrosis. Style of writing is somewhat amateur, and in the book she seemed to generally disregard her son, who also suffers from CF. It could be that the book was about her daughter and she wanted to limit that focus, though. I have no idea how anyone gets through the loss of a child. :(
This is a short read. I sat down on a Saturday afternoon and read the entire book. It is a very emotional story. The author did a good job explaining part of her journey as the mother of two children with Cystic Fibrosis. Parts of the book are quite heartwrenching.