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Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties
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Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties

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3.76 of 5 stars 3.76  ·  rating details  ·  178 ratings  ·  33 reviews
An inspiring guide to staying in control of your health care, your life, and your dreams despite having chronic illness, by a popular journalist and award-winning blogger.
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious chi
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Paperback, 288 pages
Published June 24th 2008 by Walker Books
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Susan
She's annoying. A more thorough introduction to the other people with chronic illnesses she talks about would have been nice. Also, since everyone she talks to has been sick since childhood, she completely fails to address the issue of getting sidelined by a diagnosis you never expected.
Danielle
I felt like this book had sort of an identity crisis. It mostly seemed to be a memoir of the author's experience with chronic illnesses that she had since birth but trying to focus on experiences that chronic illnesses affect in young adults. However, it was clear she was trying to make it more of a self-help book hoping to use her experiences to illustrate how to cope with these issues. She also interviewed people with some other illnesses such as cystic fibrosis and fibromyalgia, but these peo ...more
Jenni Prokopy
what a terrific look at what it's like to live with chronic illness - especially as a young person. of course, i'm biased because i'm in it. but still...a terrific book!
Amber
I was really excited when this book was available at the library but the more I read, the less excited I felt. The narrative floated between informative, memoir and journalistic interviews but it didn't really exceed in any of these genres. All the people interviewed for the book seem similar in while they are dealing with something horrible they aren't worried about money which is a very real concern for many people dealing with chronic illness. They all seem very educated and can afford to go ...more
Cat
I didn't get all the way through this book before I had to turn it in to the library, but I definitely want to pick it up again. I didn't really see this as a "self-help" book, and it definitely wasn't a "woe is me" or a self-pity book. It was kind of a strategic guide for coping with chronic illness. Some aspects might have had a self-help flavor such as making sure that you advocate for yourself, knowing that it was ok to lay down the law about getting your vitals taken when you were in for so ...more
Rachel
Jul 08, 2008 Rachel rated it 5 of 5 stars
Recommends it for: Elynor
Shelves: favorites
Living with chronic illness in your twenties and thirties can be difficult. During this time, most people are planning careers, families, and financial stability. Many with chronic illnesses are also planning those things, but also have to balance doctor appointments, emergency room visits, and battles with health insurance companies.

Using her own experiences as a person with multiple rare conditions, Laurie Edwards explores early adulthood complicated by chronic illness. Not only does she docu
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Sarah Pascarella
Full disclosure: A friend wrote this book, so I may not have the most objective review. Having said that, while not affected by chronic illness myself, others experiencing a wide spectrum of chronic illnesses have impacted my life both personally and professionally. I picked up this book to gain a greater understanding of their struggles and, through this understanding, to become a more empathetic friend and colleague. Edwards does a great job in conveying the broad range of issues those with ch ...more
Barbara
Although I'm no longer in my 20s or 30s, I found this book insightful for anyone living with chronic illness. Many of the topics are relevant no matter your decade in life. And the author clearly has an analytical approach to the real-life situations she shares, including but not limited to her own experiences. On the other hand, this isn't all black & white, dry science. It's about the realities of living with chronic illness, and Edwards strikes just the right balance between witty and wis ...more
Jenn
I apprecited the point of view from this book, but I really felt that she could have delved deeper on the topics and provided more examples, suggestions, and research. But I love that she spoke about having a chronic illness in college. I just felt that she could have done more, it's as if she just skimmed the surface. But I would definitely suggest reading this book if you have chronic illness and are young.
Rhiann
I am very excited for the first #spooniebookclub which is to be held tomorrow night at 8 P.M. (GMT) over on Twitter. The first book that was chosen was one which we will all would relate to - a book which examines what it is like to live with a chronic illness - and as we were all under the age of 30 - this book seemed to be the perfect fit for us all.

Interestingly, after a discussion with a fellow book group member; we both felt that the writing style of the author felt rushed and forced as if
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Leslie
This review has been hidden because it contains spoilers. To view it, click here.
Nicole Girolomo
I have had a chronic illness since I was in my mid-twenties so I thought this would be a good read for me. I did find a lot to relate to but also a lot to be thankful for as all of the people profiled in the book seemed to be a lot worse off than I am currently. I think this is a good read for anyone who knows someone with a chronic illness, it lets you in for a glimpse of how it really changes your life, for better and for worse.
Leslie
This is listed as a Health and Self-Help book. I agree it pertains to heath, but as far as self-help, I feel like it was mostly the author helping herself. Combining the memoir genre with self-help just didn't work great here. I found her continuing assertions that she has matured past x, y or z to get annoying. Perhaps I would have identified more had I actually had a chronic *illness. Rather, I have chronic pain of mysterious origin, which struck in my mid-30s. I still prefer the book Chocolat ...more
Carrie Kellenberger
Life Disrupted isn't really a guide to staying in control of your chronic illness, but it does provide a lot of insightful information from an award winning blogger and journalist that is chronically ill with a rare genetic respiratory disease. This is the second book I've read by Laurie Edwards, and it's like reading about my own personal struggles with chronic illness.

Edwards doesn't really provide information about how to manage your own health care, but she does write about how important it
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Eryn Duffee-braun
Self indulgent, not helpful nor interesting. Her solution to everything seems to be finding a partner who is as willing to play into the "victim of illness" martyr role as the author is.
Emily
Oct 18, 2008 Emily rated it 4 of 5 stars
Recommends it for: chronically ill, those who know someone with chronic illness
I enjoyed this book quite a bit - reading about others' experiences with chronic illness in their 20s and 30s. Additionally, the author covered many of the different issues chronic illness brings up in that time of life.

If I wished for one thing in this book, it was a discussion on those who became chronically ill in their 20s and 30s. That was more of what I expected, but most of the experiences represented were of those who were chronically ill through childhood, as well. Of course this persp
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Sara
A lot of this book didn't apply to me, as I while I have a chronic illness I haven't had to be hospitalized frequently because of it, but I did still enjoy it. It's a funny and yet "real" look at how chronic illness affects your life in your younger years. It explores dating, school, hospitalizations, friends, socialization, and the decisions to marry and have children or not.

It has a lot of valuable information as to how to be your own advocate as you navigate the hospital system, and I'm alre
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Kristen
As a young woman with chronic illnesses, this book was invaluable to me. Not necessarily for any suggestions it offered, though there were a few I took to heart, but just for the acknowledgment of a shared experience. Being sick is a lonely place to be sometimes, and it helps me to see that other people are going through similar trials and have the same fears as I. Whether the writing itself deserves 4 stars, I don't know. But it helped me feel normal again, and that's worth a lot right now.
Aviva
Aug 17, 2010 Aviva rated it 5 of 5 stars
Recommends it for: Anyone with chronic illness or with a loved one with chronic illness
The title might suggest that the book's target audience is the under 40 crowd, but it is just as good for those of us in the over-40 age group. Laurie is a fabulous writer who not only describes her own experiences with lifelong chronic health issues but interviewed plenty of others too. Whether you have a chronic illness yourself, or you have a loved one with chronic health problems, this book is well worth the cover price and the time spent reading it.
Rachel
I have quotes from this book saved in my phone-- felt like the first time I could relate to an author's experience of illness
Chandra Rogers
Fantastic, must read for anyone with a chronic illness or who loves someone with a chronic illness. The title is misleading in that I think it's relevant for any age whether it be parents of children or spouses of seniors.
Candice
definitely a great self-help book for those who have been dealing with chronic illness since childhood. wouldn't recommend it for those diagnosed later in life though - you won't find much to relate to here.
Kelly
I skimmed some of this book and read other parts. She has lots of useful information and points to ponder about the Chronic Life. I am already a fan of her blog so I know she has valuable insight.
Tracy
If you live with a chronic illness, this book will tell you things about yourself even you didn't know. It's like reading a book written by your best friend.
Jenny
A very, very solid book that I'll be recommending to my friends who also have chronic illness in their young adult years.
Donkey
A great perspective on the perils of living with chronic illness. It's a bit fluffy in some parts, but overall pretty good.
Brooke
Great resource for young people dealing with chronic illness, as well as for those who love them. Highly recommended!
Patricia
Mar 11, 2009 Patricia is currently reading it
So far, a clear description of the issues raised with chronic illness...
Anne
A surprisingly upbeat guide for young adults to living with chronic illness.
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Laurie Edwards is the author of Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties (Walker, 2008). She is a health journalist whose personal essays and articles have appeared in the Boston Globe Magazine, Glamour, and many other outlets, including her award-winning literary health blog, www.achronicdose.com. She received her undergraduate degree from Georgetown Univer ...more
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