Louder Than Words: A Mother's Journey in Healing Autism

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Louder Than Words: A Mother's Journey in Healing Autism

3.87 of 5 stars 3.87 · rating details · 2,324 ratings · 482 reviews

If someone you love is diagnosed with autism, LOUDER THAN WORDS is the first book you should read.

One morning, Jenny McCarthy was having a cup of coffee when she sensed something was wrong. She ran into her two-year-old son Evan�s room and found him seizing. In that moment, Jenny went from being the mother of an average toddler to being in the midst of a medical odyssey...more

Hardcover, 203 pages

Published September 17th 2007 by Dutton Adult (first published January 1st 2007)

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Jan 23, 2008 Amie Minken Merhege rated it 4 of 5 stars

A heartbreaking and gutwrenching tale of a mother doing her best to deal with a terribly difficult and confusing diagnosis. I really give a ton of credit to Jenny for putting herself out there like this. I haven't read any of her other books or generally paid attention to anything she has done, but she has definitely captured and speaks the universal language of motherhood.

The criticism levelled at this book seems to follow three main themes:

1) Her son recovered too fast, too much, too miraculou...more A heartbreaking and gutwrenching tale of a mother doing her best to deal with a terribly difficult and confusing diagnosis. I really give a ton of credit to Jenny for putting herself out there like this. I haven't read any of her other books or generally paid attention to anything she has done, but she has definitely captured and speaks the universal language of motherhood.

The criticism levelled at this book seems to follow three main themes:

1) Her son recovered too fast, too much, too miraculously and gives parents a false sense of hope. My feelings on this is that she only has her story to tell. While it is certainly true that this kind of recovery is atypical, I don't think it hurts to give suffering parents hope and motivation to keep trying to help their kids. Jenny never says that if you follow her protocol, your child too can be saved. The overarching message is just not to give up, and keep trying something. I think that's a better message than "this is a horrible diagnosis and there's nothing you can do to help your child."
2) Her treatments are based on the internet, not real science, and therefore quackery. Well, which is it? Did her son recover too fast or are her theories on the disease bunk? If there's some compelling reason for parents to not at least try the GFCF diet, I'm all ears...but I really think it's sad that in this country we're so adamantly opposed to the idea that hey, maybe what we put in our bodies does stuff, positive or negative. So her methods are unproven. So was everything we know today about science, until we proved it. And while I would love to see a randomized controlled trial studying GFCF diets or the rates of autism in vaccinated vs. unvaccinated children, Merck ain't exactly signing up to fund them. We considered thimerasol safe...until we didn't...the oral polio vaccine the best way to prevent polio...until it started causing polio...Vioxx...see a theme? It's not conspiracy, it's just the way we operate.
3) Her treatments are too expensive and therefore not realistic options for most parents with autism. Well, that was sort of the point of the book. People need to start paying attention to this disorder so it will get some funding. I think parents of autistic children should be aware of what's out there and that they can't afford so they can lobby our government to put some money where it needs to be, and drum up some financial assistance from private citizens. Is there anyone who read this book that doesn't feel like they could throw $10 the way of a family affected by autism?

The book is not perfect by any means. The style is completely conversational and while I am a huge advocate for profanity, the swearing gets to be over the top. But, you definitely get that she's pissed, and she has every right to me. She's a little new agey...I'm not down with the Indigo and Crystal children at all. She made a glaring error about something vaccine related, and overall I do wish she'd presented more of the science behind what she's talking about, but it was more just an essay of what she went through and some "here's where to get more information", which is fine too. (less)

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Dec 18, 2007 Laura rated it 1 of 5 stars Recommends it for: parents who have just received an Autism Diagnosis

McCarthy book details the journey of her son Evan beginning with severe seizures which led to a diagnosis of Autism.
McCarthy does a great job of projecting the strong emotions associated with receiving a diagnosis and going through the ups and downs of the journey.
McCarthy used a variety of treatments including ABA and the GFCF diet. She provides lots of information on the different methods and resources available. I found the most valuable part of this book to be the summary guide she provid...more

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Aug 05, 2008 Terry rated it 3 of 5 stars

Shelves: non-fiction

Okay. When I saw Jenny McCarthy on Oprah's show (don't judge!) about autism I was enraged by her insistence that autism can be cured. (I was curious that she mentions "healing autism" in the book's subtitle but she really doesn't push the whole "I cured my son's autism" that much...well, until the end. I still find that stance unethical at best.) It can't. It can be managed, and the symptoms/effects can be drastically reduced through aggressive, consistent therapies and diet, but it cannot be cu...more Okay. When I saw Jenny McCarthy on Oprah's show (don't judge!) about autism I was enraged by her insistence that autism can be cured. (I was curious that she mentions "healing autism" in the book's subtitle but she really doesn't push the whole "I cured my son's autism" that much...well, until the end. I still find that stance unethical at best.) It can't. It can be managed, and the symptoms/effects can be drastically reduced through aggressive, consistent therapies and diet, but it cannot be cured. Period. Anyway. But I hate people who rail against books without actually reading them, so I read the book. And I actually liked it. I would recommend this to a family with a newly diagnosed child because I think it would offer a lot of guidance and comfort. Any family who has had a child with any kind of medical crisis or diagnosis would probably find comfort in her journey to getting her son properly diagnosed. It does point out the problems parents face in getting medical professionals to TAKE THEM SERIOUSLY which is mind-boggling but through her stories and those of other parents, all too common. Actually probably most people find it difficult to get their doctors to take them seriously, but maybe it all depends on your doctor and/or health insurance. Another quibble (in addition to her insistence that autism can be cured or healed) is that she is utterly blind to the role finances play in this situation--hers and others'. It's great that she can work just three days a month and spend the rest of the time working on helping her child without giving money a second thought, but most families simply can't do that.(Don't tell me about refinancing her house--I'm sure refinancing HER house is a little different than refinancing the houses of "ordinary" people.) It's nice that she can afford a full-time nanny even when she's not working, but most families can't do that. It's nice that through her money and her connections she can get an appointment to see "the nation's top neurologist" but most families can't do that. I was upset when she complained about the "depressed" mothers at one of her son's programs who seemed to "feel sorry for themselves". Well, maybe they're depressed because they waited months to get into the program and you sailed in within days! Maybe they're depressed because once this program ends, they can't afford to start another one! Maybe they're depressed because they're living in their car because their child's medical bills have left them homeless! It's nice that she can afford multiple doctors, including one in another state entirely, but most families can barely afford one. She marvels at the expense of the diet and therapy requirements, but it's never really an issue for her, and it angers me she doesn't ever mention that it's an issue for most families. Those annoyances aside, and with a big dose of AUTISM. CANNOT. BE. CURED., the book is still worth consideration.(less)

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Oct 20, 2008 M rated it 5 of 5 stars

My little boy was recently diagnosed as being on the Autistic spectrum and it's a scary, confusing and overwhelming thing to have to deal with...especially in the beginning. My husband and I have spent untold amounts of money already on therapy, therapeutic/adaptive toys, sensory paraphernalia and we've spent countless hours reading "how-to" books, on the phone arranging for services and arguing with our insurance company.

What a breath of fresh air to read a book by a mother who's been there! I...more

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Jul 17, 2008 megh rated it 1 of 5 stars Recommends it for: no one

Recommended to megh by: oprah

Shelves: autism, disliked-greatly

horrible, biased, awful. so many better books out there on Autism that are actually helpful and don't go about looking for a "cure", but rather helping your child reach his/her full potential. Last book you should read if you want to waste your time reading it at all.

9 likes · like · see review

Sep 19, 2008 Bmfinn1008 rated it 4 of 5 stars

Who knew Jenny McCarthy could write? I read this book to better understand what my daughter-in-law does and came away with a much better understanding of autism than I thought.

2 likes · like · see review

Jul 19, 2010 Alison Lake rated it 2 of 5 stars · review of another edition

This book was a little bit strange to me. I am really interested in autism as I am a teacher and come across children with autism frequently. I thought it might be interesting to read a celebrity's account of her son's autism. The beginning of the book was really good and drew me in to her story. But then she started to get a bit pushy about her ideas about the origin and treatment of autism. It almost seemed like the book was pushing a very specific agenda. Also, I was very confused about her d...more

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Jun 27, 2008 Christina rated it 2 of 5 stars

This was a quick read, and I'm not sure what to think about it. If it weren't for the language (she likes to use the f word a lot for some reason), I'd probably give it three stars. The author is a celebrity (not that I'd ever heard of her) whose son is diagnosed with autism. The book follows her journey as she tries various diets, medicines, and behavioral intervention (she even tries various faith-healings, and visits from some persistent Mormon missionaries made me smile). The healing her son...more

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Mar 26, 2008 Erin rated it 1 of 5 stars

Shelves: autism

"If someone you love is diagnosed with autism, Louder Than Words is the first book you should read." So far from the truth. This is probably one of the last books you should read. Jenny McCarthy's book is her personal story of her journey in dealing with her son's autism. It offer little factual information on autism or on ways to treat it. For me, this book was a 200-page rant. It was whiny and full of swear words. While I appreciate Jenny's struggles, she comes off as extremely self-righteous...more

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Jan 20, 2008 Roger rated it 3 of 5 stars

My brother is one of the hundreds of thousands of Americans with autism. I don't believe that he would have responded to any of the treatments that worked for Jenny, rather he's making some progress with lots of therapy and a constantly evolving cocktail of behavior modification meds. The fact is there's many different varieties of autism, and her son Evan's journey is quite different than my brother's. But as McCarthy says, this book isn't about a cure for autism, it's about having faith and ne...more

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Oct 21, 2007 Tara rated it 5 of 5 stars

Shelves: loved-it, personalgrowth

I saw Jenny McCarthy talking about this book on Oprah so I bought it. I have not read any of Jenny's other books, but I was very interested in learning how autism effected her life.

I have to say, Jenny McCarthy is a very dedicated mother who was going to stop at nothing to find out what was wrong with her son and how to "fix" it. I thought her journey, from the initial incorrect diagnosis to the numerous breakthroughs Evan completed was both heartbreaking and hopeful.

At age 2.5, Evan is discover...more I saw Jenny McCarthy talking about this book on Oprah so I bought it. I have not read any of Jenny's other books, but I was very interested in learning how autism effected her life.

I have to say, Jenny McCarthy is a very dedicated mother who was going to stop at nothing to find out what was wrong with her son and how to "fix" it. I thought her journey, from the initial incorrect diagnosis to the numerous breakthroughs Evan completed was both heartbreaking and hopeful.

At age 2.5, Evan is discovered in his room seizing and Jenny immediately is thrust into a world of terror and incorrect medical diagnoses until she begins to push for the answers. The road leading to Evan's diagnosis of autism is a difficult one, with Jenny fighting with her pediatrician and a neurologist, who both think his problems are epilepsy and do not feel it is necessary to do any other tests. Jenny's marriage becomes more strained as the months go by and she discovers that her and her husband have very different ways of dealing with the stress of Evan's illness.

Jenny, finally, arrives in the office of a very brilliant doctor who takes one look at Evan and tells Jenny he's autistic, not epileptic, and he begins a new treatment for Evan as well as encourages her to continue to fight for her son. She does. She uses Google for research and meets other mothers with autistic children, and finds hope in their stories.

Jenny is very upfront and in your face with this story, and she is very honest. I remember Jenny from her MTV days and never realized there was more to her than that MTV persona. This book gave me a completely new idea/opinion of her as well as gave her all of my respect. I think anyone, whether they have children or not, would learn a lot about life, faith, love, and autism from this book. I do not have children of my own, but one day I might and with the statistics being so high, 1 in 150 diagnosed with autism, I think it would be absolutely ridiculous for me to put my head in the sand and think "It won't be my child". It pays to be diligent in the world of parenting, and Jenny was very diligent. She brought her son through some very dark days and he is getting better. Her love and her faith helped her pull through those hard days and nights. Her strength is something I envy and it is that strength that I think all autistic children and parents of autistic children need from those around them: their friends and family. That's definitely the message I got.(less)

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Apr 01, 2009 Cyndee rated it 1 of 5 stars

I knew at the outset of reading this book that I did not agree with Jenny McCarthy's opinions on the causes and treatments of Autism but I'm a firm believer that you can't argue your own point well if you don't know the opposition. Also, as a mother of a son with Autism myself, I thought I would AT LEAST find some passages, some experiences, some emotions in common with her...something that would touch me and make me say "I know exactly how she feels." It didn't happen. The only thing that I got...more

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Feb 17, 2008 Jacqlyn rated it 1 of 5 stars

Shelves: autism

While McCarthy provided brief descriptions of various treatments (ABA therapy, GFCF diet, and supplementation), she spends much more time blaming God, the medical community, and her ex-husband for Evan's autism. This poorly written book reads more like a rant or distasteful monologue. While I am not defending or excusing the medical community for their slow responce to Autism or the general refusal to link the possibility of vaccines to autism, profanity, name calling, and blaming will not serve...more

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May 13, 2013 Keleigh Crigler Hadley rated it 5 of 5 stars

First, my heart and prayers go out to any mom or dad who is struggling with autism or any other NSD.

Second, this book is all about HOPE, FAITH, and DETERMINATION. I read it in a couple hours. I went from crying to laughing, to saying AMEN! Jenny McCarthy should be applauded for writing such an honest, courageous, heart-lifting book. My son is 21 months and I was always afraid of the "A" word. He got a near fatal ear infection when he was 17 months and I have been pro-alternative therapies sinc...more

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Jun 18, 2012 Kwoomac rated it 2 of 5 stars

Shelves: autism, autobiographical, reviewed, 2012, nonfiction

First, in terms of McCarthy's writing, it can be over-the-top melodramatic. Of course, I haven't been in her shoes and I have not had a child diagnosed with autism but still. The moment I opened my eyes that morning, I had an uncomfortable feeling. It was as if my soul had the flu. Aside from this, it seems to be a heart-felt memoir of her journey to get help for her son. She does talk about healing autism, but she never says she cured her son of it. I think the healing is in reference to her w...more

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May 25, 2012 Lulu rated it 1 of 5 stars

So I'm actually autistic, and I hate Jenny McCarthy. She spreads dangerous misinformation about autism and uses her son as a way to get attention for herself.

I hate to break it to everyone, but autism cannot be cured. The best course of action is behavioral, social, and speech therapies and special education. Putting your child on a special diet might lessen some of the symptoms, but they aren't "cured." We are not "crystal children" either. Crystal children is a comforting lie for parents who r...more

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Dec 07, 2011 Crystal rated it 5 of 5 stars

I just read the book,
Louder than Words by Jenny McCarthy,
and I am so grateful that I did. I had put off reading it because I kept hearing that it was a joke, that it wasn't factual, etc. but then one day while I was out garage-saleing I saw it and thought, "What the heck...its' like 50 cents". So I got and I read it. Actually I devoured it.
and I was left in tears.
Thankful tears that I had found it and could begin formulating a plan.
Sad tears for everything that Jenny had to go through with her...more

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Aug 02, 2011 Amber rated it 1 of 5 stars

I am ashamed to say that I actually wasted time and money on this book. Jenny McCarthy is a moron! Her son doesn't even have autism, he has Landau-Kleffner syndrome which is often misdiagnosed as autism. Also her claims of "curing" autism are ridiculous and disgusting! She has encouraged the untrue belief that vaccines cause autism, they have been proven NOT to have ANY link to autism! As for her claims of her son being a "crystal child" and her being an "indigo mom" they just prove just how ign...more

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Sep 07, 2010 Liz rated it 1 of 5 stars

Shelves: 2010-reads, books-for-my-field

I should start this review stating that I am a Speech Language Pathologist working in the schools and I work with kids who have Autism and their families.

I went into reading this book completely preparing to hate it, having previously heard the Author's point of view about the cause of Autism and that it can be "cured." After reading the book I am in two minds. It was written by a good parent with the intention of giving others Hope. But, we should not forget: she is NOT a medical or other profe...more I should start this review stating that I am a Speech Language Pathologist working in the schools and I work with kids who have Autism and their families.

I went into reading this book completely preparing to hate it, having previously heard the Author's point of view about the cause of Autism and that it can be "cured." After reading the book I am in two minds. It was written by a good parent with the intention of giving others Hope. But, we should not forget: she is NOT a medical or other professional working with Autism.

She followed her gut looking for a cure. I caution all parents to use well documented research and safe therapies rather than simply following their gut. These treatments will not work for every child and aren't appropriate for every form of Autism. Some alternative treatments can be harmful. Not all people providing these treatments are medical doctors and parents should always proceed with caution. One treatment mentioned in the book (but not stated as tried), Chelation therapy, has been documented to be fatal or cause kidney failure.

While it's important for parents of children who have Autism to have hope, I caution them that Evan may be an atypical case. Not all families are financially and realistically able to provide the treatments that Evan received. Not many "breadwinner" parents can only work 3 days a month and support their family.

Additionally, Evan's diagnosis of Autism could have overshadowed the potential effects of epilepsy. I have no information directly about how the two diagnoses interacted in Evan's treatment, but only Autism is mentioned outside of medication for the seizures. But - we should not forget that Evan had a TWENTY minute seizure and that could have caused some brain damage. Additionally, seizure medications can dramatically affect an individual's behavior (i.e. the exorcist and the zombie?!?!). Fortunately, our brains can be pretty miraculous and the neural plasticity (that allows people to recover from brain injury) could be responsible for his dramatic improvements. Evan could have had a high functioning form of Autism. He could have suffered some sort of brain injury related to a seizure and his brain healed to some degree. When this happened his Autism appeared to be "cured." When in reality Evan may have returned to high functioning form of Autism (his remaining obsessions with escalators and difficulties with abstract langauge.)

A side note for parents: wait lists can be extremely long for most things related to autism. You can always request an evaluation from your public school to see what services your child qualifies for. I still recommend getting put on the wait list. Not all kids qualify for therapy in schools. Some kids also can qualify for both. (less)

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Nov 14, 2009 Lani rated it 3 of 5 stars

Shelves: biography, non-fiction, psychology

Not wanting to get into any of the autism/vaccine controversy, I can't speak to the validity of McCarthy's theories on the subject. And while I haven't seen her interviews, at least in this book McCarthy does not pretend to be an expert - just a mom who is trying to share her experiences. I never felt that she was preachy or stating her ideas as facts, just her own experience with her own son's illness.

It was still an interesting book though. I think in general the medical establishment does ten...more

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Aug 23, 2009 Lea rated it 2 of 5 stars

Shelves: true-stories

ok, i read this book and went into it with an open mind.... Being a profesional in the special education world, I found some of this book helpful but mostly absurd. Her good points is that not all children who suffer from autism are the same...I CANNOT STRESS HOW TRUE THAT IS. The main part I dont agree with is that there is a cure....THERE IS NO CURE OR PREVENATIVE AT THIS POINT. We all like to wish we can fix these children/adults, but realistically the best thing we can do for them, is accept...more

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May 30, 2009 Ellyn rated it 1 of 5 stars

Shelves: 2009

Because I work with parents of kids with autism, and Jenny McCarthy's name is out there in the autism world, I thought I should read this book. In all fairness, I have to admit that I went into the book expecting to thoroughly dislike it, and I wasn't disappointed. For one thing, Jenny McCarthy is a terrible writer. She swears far too much, and much of the book feels like an irrational, self-centered rant. Granted, I don't have kids, let alone a child with autism, so maybe I shouldn't judge. One...more

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Jul 26, 2012 Jennifer rated it 4 of 5 stars

I'm going through a section at my library about autism and this was my first stop. I've heard some from Jenny McCarthy on talk shows and was inclined to believe she was anti-vaccination all the way, but her book really shows her heart on the matter.

The best part is the end, when she describes her inability to accept doctors' Band-Aid approach, always looking beyond the symptoms to find a cause. Though her thoughts on autism's cause(s) are only theories based on research, she gives readers an op...more

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Apr 09, 2010 Ashley Calvert rated it 4 of 5 stars

I consumed this book in 24 hours. It was so very compelling. *

I know little to nothing about Autism, but I have heard the recent arguements concerning the possible link between Autism and vaccinations. This book showed one mother's struggle through just that. It amazed me to hear how a lot of the symptoms were physical, not neurological, and most were cured through change of diet and supplements. I don't want to step on any toes and claim that ALL children who have Autism can be cured, but Jenny...more

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Apr 13, 2011 Myriam rated it 5 of 5 stars

I think that this is the best nonfiction book I have read so far. The last time i have thought a nonfiction book was this good was since ghostchild. I think that knowing that its a true story makes the story that much better. Not that all the content is a good thing.
The story is about a mother that has her only son diagnosed with autism and this starts an everlasting fight against autism. Later i found out that Jenny McCarthy, the author is an actor. She goes on to tell us her horrible experienc...more

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Feb 02, 2011 Halah rated it 4 of 5 stars · review of another edition Recommends it for: Wafa Aljohani

Recommended to Halah by: Rozan Al-Khateeb

Away from the lights of the world of celebrities, Jenny McCarthy is being a pure mother of a child with autism, one of the most puzzling disorders nowadays.
The book tells the story of Evan starting with the first seizure he experienced. As a mother, Jenny tries in this book to document every strong feeling she had that was "louder than words". She tells the story of a brave mom who has tried various types of intervention and who has been visiting different therapists to help her son; she also t...more

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Aug 06, 2011 Lindsey rated it 5 of 5 stars

I read this book because my younger brother has Autuis. he is 14 years old. I cryed so much because I could relate to Jenny, although William is my brother and not my son. I'm just thankfull that my brother is not part of the 30% of Autistic children who have Epelpcy. I don't care if you have a relitave, friend, no link to Autism, or never heard of this illness before: PLEASE read this book. What I want to know is why Diabities, AIDS, and Cancer is more know and researched when there will be mor...more

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Aug 05, 2010 Claire rated it 1 of 5 stars

As someone who works with children with autism regularly, I'm skeptical about most mainstream books regarding autism. The scary thing about this book to me is that it's actually well written. It's a convincing book about told by a mother who was convinced of her child's diagnosis and was willing to do anything to solve the "problem." It's not my place to debate the correctness of the diagnosis or her decisions in treating her child, but the fact that in her book, McCarthy presents her path to a...more

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Dec 23, 2008 Mary rated it 5 of 5 stars

This is an amazing book that takes you thought a beautiful journey of how a mother will do anything to keep her son alive and healthy.It all starts when early in the morning her baby hasn't woken up and when jenny goes up she had a really bad feeling.The instance she walks in she sees that her son is having a seizure,as soon as he reached the hospital she wanted answers the doctors made a lot of exams and there was nothing wrong.Then doctors noticed how he had the seizures and said that those we...more

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Dec 12, 2008 Sonya S rated it 1 of 5 stars Recommends it for: NO ONE

Never before have I tried to read a book so full of misinformation. It is PAINFUL and CAUSES ME TO FROTH AT THE MOUTH. Want *real* information? Read Paul Offit. Check out the Autism Diva's blog. Visit the James Randi site (http://www.randi.org/site/). Listen to the Skeptic's Guide to the Universe. But please, do NOT believe this woman. It is offensive, scientifically fallacious, and downright *wrong*.

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About Jenny McCarthy

Jennifer McCarthy is an American model, comedian, actress and author. She first appeared in Playboy magazine in October 1993 and was named Playmate of the Year in its June 1994 issue. She later began a career in television and film and has recently started writing books dealing largely with her pregnancy and motherhood of a child with autism.

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