The Lives They Left Behind: Suitcases from a State Hospital Attic

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The Lives They Left Behind: Suitcases from a State Hospital Attic

by Penney Darby, Peter Stastny, Darby Penney, Lisa Rinzler (Photographs), Robert Whitaker (Foreword)

3.59 of 5 stars 3.59 · rating details · 598 ratings · 130 reviews

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Hardcover, 205 pages

Published January 1st 2008 by Bellevue Literary Press

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Jun 28, 2008 Emily rated it 4 of 5 stars

Shelves: 2008, assorted-histories

This is a transfixing and deeply sad book, and its genesis is breathtaking: the discovery of hundreds of suitcases in an attic of the abandoned Willard State Hospital in New York, and taken to the New York State Museum. In "The Lives They Left Behind," the authors reconstruct the lives of ten of those suitcase owners, and not only is their research formidable, but the coherence of these narratives -- even in the face of gaps in the record, or myriad unanswered questions -- is ensured by the grea...more This is a transfixing and deeply sad book, and its genesis is breathtaking: the discovery of hundreds of suitcases in an attic of the abandoned Willard State Hospital in New York, and taken to the New York State Museum. In "The Lives They Left Behind," the authors reconstruct the lives of ten of those suitcase owners, and not only is their research formidable, but the coherence of these narratives -- even in the face of gaps in the record, or myriad unanswered questions -- is ensured by the great, humane intelligence that underscores this project, which doesn't resort to emotional overstitching, and even when it holds back from wallowing in the more abject details, does so discreetly, never moralizing about our desire to know them. (How could it? Well, a lot of similarly-oriented books make this mistake, and thereby reveal their bad faith.)

One element that does strike me as problematic is the extent to which "The Lives" are shaped around a critique of 20th-century institutional psychiatry. Not that there isn't a ton to criticize (to put it mildly), but occasionally the book overexerts itself in rationalizing the factors that led to these subjects' hospitalization, implying, in most cases, that they were "misunderstood" more than "mentally ill." More plausible is that these are not mutually exclusive categories, and one could argue that minimizing the degree of these subjects' problems -- and the complexity of those problems -- is *part* of the problem that the book is critiquing (i.e., simplistic, uninformed diagnosis).

All of this is undertaken in good faith, though, and it's admirable that the authors act in part as the advocates these patients presumably never had. But the book is at its best when it isn't editorializing about the material, but simply doing what it set out to do, which is to disassemble and re-assemble these abandoned lives, and to make them available to their readers. The pathos of the material needs no commentary; a clear, close, careful look at the evidence -- the bureaucratic records, the subjects' personal effects, which they never saw again after they were admitted -- establishes that these patients were handed a death sentence the moment they entered the doors of Willard State Hospital. When the book moves aside to give us an unobstructed view, what it shows is more than enough.(less)

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Jan 09, 2009 Osho rated it 1 of 5 stars

Shelves: 2009, psychology

Terribly disappointing because it could have been wonderful, but instead suffers from repetitive, barely-restrained vitriol. The book's ostensible focus is on reconstructing, from suitcases left in the attic, the lives of people who were patients at a residential psychiatric hospital. This is an interesting proposition, but it is not pursued hermeneutically or adequately. The problem is not that the authors have a point to make and use the case studies to support it. Rather, they are not suffici...more Terribly disappointing because it could have been wonderful, but instead suffers from repetitive, barely-restrained vitriol. The book's ostensible focus is on reconstructing, from suitcases left in the attic, the lives of people who were patients at a residential psychiatric hospital. This is an interesting proposition, but it is not pursued hermeneutically or adequately. The problem is not that the authors have a point to make and use the case studies to support it. Rather, they are not sufficiently up-front about their agenda and present a veneer of scientific inquiry to convey their neutrality. However, they are not neutral, and their thesis is ill-served by not being explicitly described.

An otherwise-interesting topic is marred by heavy negative over-generalization, failure to stick to the topic it proposes to present, and failure to separate the issue of type and quality of care from the question of what to do when a person is unable to manage in society. Making the book worse is poor editing, both in terms of sometimes-confusing organization and flow, and unclear and repetitive statements. Some important information and explanation are also missing (for example, whose hands are holding the people's possessions in the photos, and is it journalistically suspect to have used hands that appear to match the person's demographics?). Another area that seems deceptive and detracts significantly is the authors' contradictory attitude about the patients' privacy. On the publishing information page, they report that they would have used patients' names but for privacy laws. I can understand this regret; my dissertation study participants wanted me to use their names and I was not permitted to do so. However, the authors' desire to use names stems from their own wishes, not their subjects', as their subjects are dead. Presumably if the patients' relatives had given permission, the authors could have used the patients' names (since the survivors hold the decedents' privilege). It is possible that the patients would not have wanted their names used. In this light, the authors' use of people's first names, full-face photos, and potentially identifying information seems both coy and unethical, as well as unnecessary and provocative. Who is it who was stripped of their autonomy and used for other people's ends by the bad legal/medical/psychiatric abusers? And whose privacy is abrogated by the authors, for their own purposes? Hmm.

I support the authors' contentions that psychiatry has been used as an instrument of social control and management, that patients were and are pathologized and disbelieved, and that they often receive inadequate care, especially in public institutions. This is widely documented and more effectively demonstrated elsewhere, though it bears repeating. The authors could have used this book more effectively for this purpose had they constrained their editorializing and not engaged in multiple instances of extreme and overgeneralized assertions. For example, they don't give any examples of people who they think need any kind of psychiatric intervention, yet also condemn the state and psychiatric/medical profession for not providing other services. Perhaps most egregiously problematic, they condemn the objectification of the patients and the loss of their complexity and humanity, yet by only portraying the parts of patients' histories that support the authors' perspective, they also treat the patients as objects that serve the authors' ends.(less)

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Oct 02, 2008 Carter rated it 2 of 5 stars

The individual narratives of patients lost forever to the asylum-based mental health system are moving & deeply disturbing. But the overall approach by the authors is far too biased to match the stories they're telling.

The book basically contends that its subjects were never really mentally ill, just tossed into Willard State Hospital because they didn't fit within societal norms -- and kept there until death because their labor was essential to the hospital's low-cost survival. Certainly th...more

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Jul 27, 2011 Lex rated it 2 of 5 stars · review of another edition

Shelves: mental-health-mostly-non-fiction

This book had such potential. Willard was a state psychiatric hospital in the Finger Lakes region of New York that only recently closed. The suitcases of people who died or left without family were catalogued and studied in hopes of learning more about their owners - especially to try to gain insight into the lives they led prior to their psychiatric admission. Last names were changed to protect privacy - except if one looks at the multiple pictures included, several actual names can be seen. So...more

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Aug 06, 2011 Corin rated it 5 of 5 stars

This book is just heartbreaking. While second guessing the diagnosis of a patient you have never met is usually questionable, the authors take what records remain extant along with the suitcases holding what personal belongings they contained and piece together life stories that shine a bright light on an ugly era in mental health care. It makes your stomach churn to think about what happened to these people, and you can't help wondering at the motivations of those whose decisions set them or ke...more

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Sep 01, 2008 Kelly rated it 4 of 5 stars

I really enjoyed this book. The subject matter was fascinating, and the authors provide important food for thought on the state of mental health care in the U.S. It is disturbing and depressing to think about the many thousands of individuals who spent their lives in these cold, sterile (and frightening) mental hospitals where they never actually received treatment but were essentially being held to 1) provide free labor for the hospital and 2) keep them out of society.

I did have a few problems...more I really enjoyed this book. The subject matter was fascinating, and the authors provide important food for thought on the state of mental health care in the U.S. It is disturbing and depressing to think about the many thousands of individuals who spent their lives in these cold, sterile (and frightening) mental hospitals where they never actually received treatment but were essentially being held to 1) provide free labor for the hospital and 2) keep them out of society.

I did have a few problems w/this book. First of all, I question the authors' credibility. They are not listed in the book, though Peter Stastny is described as a psychiatrist, and I did verify that he is an M.D. Darby Penney is a librarian and "expert" on mental health issues and an advocate for the mentally ill, apparently being a "survivor" of the system herself. It is important for me to know on what authority they are presenting this information because, honestly, their perspective is so completely one-sided that I found it hard to believe either of them is a professional researcher.

Clearly they both have an axe to grind w/the mental health system, and while I can't say that I blame them, I felt that too often they labeled the profiled patients as individuals suffering some type of temporary trauma vs. individuals with significant and long-term mental illness. I don't doubt that many many people have been wrongly institutionalized throughout the course of history, but some of these patients genuinely seemed profoundly disturbed. It just felt like they were trying REALLY hard to find reasons why these individuals were not mentally ill in order to prove their point.

Maybe I am being overly critical here, but I just had a hard time with some of the ideas presented in the book. I recognize and appreciate what the authors are trying to do--and believe that the state of mental health in this country is an issue that deserves attention--but they come across as trying too hard, and thus as lacking credibility. Regardless of my feelings on the ways in which the social issues this book are addressed, I found it a fascinating and engaging piece of nonfiction. I highly recommend it!(less)

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Jun 16, 2013 Stormi Valentine rated it 5 of 5 stars

Shelves: medical-books

I think that some people who read this book and did not find it interesting were looking for something different. I believe they were looking for more of the horror that happened behind the hospital walls. The torture and secrets instead of being more focused on the patients themselves. These readers expected not the historical side of this subject but the side that they make Hollywood films about.

I enjoyed this book! It made the patients become not just patients but people. There is a sadness...more

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Apr 22, 2013 g-na rated it 4 of 5 stars · review of another edition

In 1995 the Willard Psychiatric Center in upstate New York closed down, and over 400 suitcases full of the belongings of former inmates/patients were found in an attic. The suitcases were saved, meticulously catalogued, and a select few were featured here. But rather than just list the contents of the individual suitcases what the authors have done ten years of research to try and discover the actual people who owned them.

Prior to the advent of modern mental health therapies in the 1960s or so,...more

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Dec 23, 2012 Lora rated it 4 of 5 stars

Shelves: favorites, nonfiction

If that photo on the cover isn't haunting enough...

About ten years ago Willard State Hospital in New York state was officially closed after operating for over 100 years as a mental institution. This book chronicles the lives of some of the patients there, as pieced together from the suitcases they brought with them. Apparently, after their arrival the patients never had access to their belongings again; the bags were stored in an attic in one of the buildings and essentially forgotten.

What is di...more

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Dec 12, 2012 Cindy Knoke rated it 4 of 5 stars

“The Lives They Left Behind: Suitcases From a State Hospital Attic.” Darby Penny, Peter Stastny, Lisa Rinzler, Robert Whitaker.

When Willard State Hospital closed in 1995, after 125 years of continuous operation, 427 patient suitcases, filled with each patient’s personal belonging, were discovered, abandoned, in an attic. This interesting book attempts to bring to light the personal stories of the ten patients whose suitcases were found. The authors chose these specific suitcases because there wa...more

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May 13, 2012 Lori Anderson rated it 5 of 5 stars · review of another edition

Shelves: history, non-fiction

This work of non-fiction is quite incredible in its scope and the amount of research that went into it. Darby Penney, a national leader in the human rights movement for people with psychiatric disabilities, and Peter Stastny, a psychiatrist and documentary filmmaker, took on this extraordinary project.

In 1995, after 126 years of operation, the Willard Psychiatric Center in upstate New York was closed. It had been home to 54,000 people. While the closing of the facility was taking place, over 40...more

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May 09, 2010 John rated it 2 of 5 stars

This was one of the most frustrating books I've ever read. The authors did a five-star job piecing together the lives of the people whose suitcases of belongings were left behind at Willard Hospital. The book is seriously marred, however, by a strange agenda: the authors seem to deny mental illness exists (except, strangely, for alcoholism and seizures). They want to attribute nearly all mental disorders to situational stressors, and bend over backward to apologize and rationalize away all indic...more This was one of the most frustrating books I've ever read. The authors did a five-star job piecing together the lives of the people whose suitcases of belongings were left behind at Willard Hospital. The book is seriously marred, however, by a strange agenda: the authors seem to deny mental illness exists (except, strangely, for alcoholism and seizures). They want to attribute nearly all mental disorders to situational stressors, and bend over backward to apologize and rationalize away all indications of an actual disorder or illness. In one case, they dismiss a patient's alleged attack on hospital staff by saying that almost all such actions by patients are provoked! In others, they attempt to analyze the symbolism in patients' delusions, digging for granules of possible stretched meaning. Again and again pharmaceuticals are condemned - except in the case of seizure disorders, apparently. Schizophrenic medications are dismissed, with the claim that 5% of the population hears voices, and 2 out of 3 of those does just fine, by learning to "distract" themselves from the voices. Really? 1 in 20 people hears voices and just incorporates it into their daily lives?

I'm not sure if this is a Scientology-type of anti-psychiatry or a strict dogmatic psychoanalytic point of view. Over and over again, they hammer at the idea that all patients would benefit from detailed, indviidual, in-depth mental assessment - that everyone should be profiled the way they've done with these individuals in the book. Great, who wouldn't benefit from that, at any point on the normative-dysfunctional spectrum?

To be sure, most of the people in this book suffered to some extent from lamentable policies or practices that have since been changed - electroshock without sedation, wet packs, overuse of thorazine, etc. But except in one case - a tubercular nurse with nowhere else to go - I saw no indication that these people were healthy individuals who were railroaded. Even in trying to make excuses for the patients' behavior in the old records, the authors reveal enough that indicated serious problems well before admission to the hospital. The authors would like to believe that these patients were essentially functional and made sick by the institutions. This is not to say there were not wrongful commitments; I just don't think the examples these authors have picked fit that bill.

I am not convinced psychiatry is malevolent or that everyone involved is out to dehumanize and destroy patients. It would be great if everyone at all points of the mental health spectrum could be given a holistic, tailored, and thoroughly personalized approach. If only all patients and potential patients had people like these authors to present their lives in context, we'd all benefit. Peer groups seem to be the best the authors have to offer as a stopgap - helping patients to help themselves through an open, participatory environment. However, until the authors get a grant to spend years making a historical portrait of my life, I'll have to depend on the inexact science of psychiatry as it is.(less)

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Jan 02, 2010 Jonathan rated it 5 of 5 stars

Shelves: absolute-favorites, nonfiction

This is a very important book. Penny and Stastny examine the mental health system through the lens of possessions left behind at a large NY state hospital for incurrable patients. This was in the Cuckoo’s Nest era, and many of these patients needed help getting a handle on their lives or recovering from some tragedy, not a life-sentence to a hospital where their life story was not listened to, or their insistance that they were wrongly committed was taken as a sign of their illness. While much h...more

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Apr 14, 2010 Sharon rated it 5 of 5 stars

Shelves: mental-health, biography

This book is an eye-opening and disturbing look into the world of mental health hospitals. From their beginnings in the well-considered British Quaker "moral therapy" treatments (that worked), United States mental hospitals became warehouses for people who were homeless, in crisis, had a language barrier or merely cursed at someone.

This story begins with an attic full of suitcases at the former Willard State Hospital in upstate New York. They contained the belongings of patients/inmates, most of...more

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Nov 02, 2009 Andrea Dowd rated it 5 of 5 stars

"The Lives They Left Behind" looks at one state mental hospital and it's history by selecting 10 former patients who's belongings were left behind either after their death or after the deinstitutionalization that occurred in the 70s. The author's helped to rescue over 25,000 pieces of luggage left behind and discovered amazing history long ignored.

By choosing 10 individuals, they were able to give them a context amid the horrific and sad history of mental health in the U.S. "The Lives They Left...more

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Apr 01, 2009 Veronica rated it 5 of 5 stars · review of another edition

Shelves: 2009, non-fiction

This book was one I chose to read on a whim, without preparing myself by delving into the subject matter beforehand. In a way, this was both a good and bad choice. Starting off, the authors introduce you to Willard State Hospital, a mental health institution established in the late nineteenth century in New York. When the deinstitutionalization of America began in the 1970's, Willard's residents began to move out to other facilities or finally obtain release (whether it be in old age or death.)...more

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Sep 19, 2008 Claudia rated it 3 of 5 stars

This could have been so much better. If the authors hadn't approached this subject with a strong bias, they might have been able to tell a more compelling story. I wanted to know about the people. I didn't need a diatribe about the horrors of asylums and state institutions for the insane.

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Jul 18, 2011 amy rated it 2 of 5 stars

Shelves: 2011

I wish there was a "revisit later at some point" option for bookshelves.

I guess I really wanted a more voyeuristic take on these things - piecing together who these people were from what was left in these suitcases, abandoned at a shuttered mental hospital.

Eh. There's some of that. But there's also a lot of information (which is good) about the way the mental health system operated from the late 19th to mid 20th centuries.

I put the book down a bit over halfway through, and returned it to the li...more

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Aug 10, 2012 Jenna rated it 3 of 5 stars

I had the most unsettling experience a few weeks ago driving past the Willard Psychiatric Hospital in Willard, NY. I can already hear the skeptical laughter, so I won't try to describe what I felt. But it was powerful and frightening. I had to go and get this book to read the stories of those poor souls left to spend decades institutionalized, given either barbaric treatments or no treatment at all, and forced to provide the free labor the facility required just to maintain itself. The research...more

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Aug 18, 2011 Becky rated it 4 of 5 stars · review of another edition

Shelves: bookclub

After a mental institution in NY closed, two researchers began to investigate the contents of hundreds of suitcases left by former patients in the attics of the various buildings. The resulting book features the descriptions of roughly 10 patients that were institutionalized- mostly until death - from the 1910's-1960's. The reasons for their "insanity" and the descriptions of their lives before and after they came to the facility are so varied and interesting. I was particularly fascinated by th...more

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Aug 10, 2011 Christine rated it 4 of 5 stars

This book paints a stark picture of life in one "humane" bucolic state mental hospital in Upstate New York. With information culled straight from the long-abandoned belongings of those who spent most of their lives there, the reader gets a feel for just how little (or how much...) needed to happen for a person to be involuntarily committed to a mental institution in the 19th and 20th centuries. Anyone with a background in mental health--or a background in being human--will be ashamed of our coll...more

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Mar 24, 2012 Betsy rated it 3 of 5 stars

Shelves: 2012, history, nonfiction

In spite of its flaws, I liked this book. As long as I kept the author's controversial biases in mind, I came away feeling more educated about early 20th century state mental hospitals and how they were run. I had no idea they were self-sufficient entities that relied so heavily on patient labor. I was expecting more detail and insight into the stories and lives of the 10 people featured in this book, but I did enjoy the peek of their lives and circumstances that was provided. Fascinating, as we...more

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Jan 02, 2009 Jenn rated it 3 of 5 stars

I don't think this book really lived up to its promise. It really could have been son much more. It was interesting, but I wish it had stayed focused on the lives of that people more and that those lives had been delved into more fully. Perhaps that's an impossible wish given their situations...but it did leave me wanting more. I think it is an important book--the whole project was important because we cannot go back in time to correct the injustices done against these people, but we can allow t...more

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Jan 19, 2013 Ellen rated it 5 of 5 stars · review of another edition

Shelves: nook, reading-group

Terrific work of biographical social history of the mental health system from the early 1800's to the mid 1970s in this country. The authors profile ten patients of the Willard State Mental Hospital based on research prompted by suitcases that were found in an attic at a building at Willard after the hospital closed. They used techniques of archivists, social historians, investigators, and mental health specialists to tell the stories of long forgotten individuals. The writing is accompanied by...more

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Oct 03, 2010 Kami rated it 1 of 5 stars

Shelves: non-fiction

This book was such a disappointment! I was hoping for a factual account of these people’s lives and a look into what it was like in state run hospitals in the early to mid 1900’s. They knew the story they wanted to tell and were not going to let pesky things like facts ruin it. Here is a quick summary of the book. None of these people were really ill, but any problems they did have were misunderstood and could have been easily taken care of without the evil staff at the hospitals. The staffs at...more

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Mar 07, 2013 Jonna rated it 5 of 5 stars

This is a fascinating book. The authors found suitcases in the attic of an old mental hospital and they learn about the patients through their belongings. It's a testament to the horrific treatment the mentally ill have gone through this century, and yet these authors treat their subjects with the utmost respect. It is amazing how much they were able to learn about the state hospital where these people stayed. It is not at all depressing, it is a fascinating book. Anyone who is at all interested...more

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Apr 13, 2011 Lisa rated it 2 of 5 stars · review of another edition

Shelves: e-books

Though an intriguing subject, to say the least, I found this book very difficult to follow. There was some good history of the American mental health system interspersed, but the patient's stories themselves were vague at best, pieced together and often seemed to contradict themselves from one page to the next. I would love to read a book on this subject that was better researched and well written. I know that there are many books written about Bellvue, perhaps I should plan to look into those,...more

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Apr 25, 2013 Eddy Allen rated it 3 of 5 stars

Shelves: arts-and-historical

“The Lives They Left Behind is a deeply moving testament to the human side of mental illness, and of the narrow margin which so often separates the sane from the mad. It is a remarkable portrait, too, of the life of a psychiatric asylum--the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives. Darby Penney and Peter Stastny's careful historical (almost archaeological) and biographical reconstructions give us unique insight into these lives...more

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Jan 12, 2013 C.A. rated it 3 of 5 stars

Shelves: read-in-2013

There are a few moments in the book that are a little sloppy, research-wise, or maybe that could have just used a better editor, but, on the whole, this is a nice resource and glimpse into how life actually went for patients in psychiatric hospitals. The narratives that are anchored by the suitcase objects are my favorite— when the research gets away from those, it becomes unmoored and reads a little more textbook. The organization doesn't quite work, either— I would have preferred to have eithe...more

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Nov 19, 2012 Stephanie rated it 3 of 5 stars

Shelves: read-2012

An interesting, and at times, confronting read.

There doesn't seem to be a lot of respect for the patients - the use of full-face photographs, lack of total removal of identification, which undermines what this book appears to be setting out to do.

However, it does offer an insight into psychiatric care (or lack thereof, really) in earlier times, and an insight into what being "insane" was actually seen as. Heartbreaking to see some lives wasted which could have been improved, and more heartbreaki...more

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