McDermott's intelligent and graceful memoir offers an intimate look at how her ideas of perfection and wholeness were turned upside down when her s...
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reviews
Jun 09, 2009
Regina
rated it: 
This book definitely belongs to a particular genre, the "mommy coming to terms with disability of a child for the first time memoir. It is not unlike expecting Adam, except instead of Downs Syndrome her child has a much more rare craniofacial disease, Apert Syndrome. I had never heard of Apert syndrome before reading this book. Because the author was a science writer by profession her discription of the disease and her child's treatments is incredibly detailed. Many children with Apert synd
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Nov 26, 2010
Marie
rated it: 
Although my son doesn't have Apert's syndrome, he was born extremely prematurely and was very sick...so I could relate to this memoir on a number of levels. Read my review here: http://mariesbookgarden.blogspot.com/201...
Apr 17, 2011
Cindy
rated it:
Science writer's account of the first two years of her son's life with Apert syndrome. Well done, but got a bit slow in the second half.
Jan 12, 2012
Rachel E
rated it:
Great story about a Mother, who happens to be a science writer, detailing the first two years of her son's life with Apert Syndrome. It brings up a lot of issues about the importance of looks and the harsh reality of prejudice. This is an interesting story that nearly everyone can relate to because it is about human nature and the bond of a family.
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