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<book id="149143">
  <title><![CDATA[Shelter from the Storm: Caring for a Child with a Life-Threatening Condition]]></title>
  <isbn><![CDATA[0738205346]]></isbn>
  <isbn13><![CDATA[9780738205342]]></isbn13>
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  <default_description>critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations. Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.</default_description>
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  <original_publication_day type="integer">17</original_publication_day>
  <original_publication_month type="integer">12</original_publication_month>
  <original_publication_year type="integer">2002</original_publication_year>
  <original_title>Shelter from the Storm: Caring for a Child with a Life-Threatening Condition</original_title>
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      <name><![CDATA[Karen Lindsey]]></name>
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      <name><![CDATA[Daniel R. Tobin]]></name>
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      <name><![CDATA[Joanne M., M. D. Hilden]]></name>
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