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Old Before My Time: Hayley Okines' Life with Progeria

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3.98  ·  Rating Details ·  1,318 Ratings  ·  152 Reviews
The extraordinary life of Britain's 100-year-old teenager Hayley Okines is like no other 13-year-old schoolgirl. Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity. In Old Before ...more
Paperback, 201 pages
Published March 1st 2012 by Accent Press (UK) (first published October 26th 2011)
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(showing 1-30)
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Giddy Girlie
Jun 10, 2013 Giddy Girlie rated it liked it
It speaks volumes about this family that my initial reaction was that Hayley's story is a bit... boring. But that's actually a good thing. If a young girl can live a life battling an illness (and its attendant issues; HBP, osteoporosis, etc.) and her life isn't 100% medical drama all the time THAT'S FANTASTIC.

Hayley and her mother alternate writing chapters and while I liked the change in points of view, a lot of the information was redundant. I think this might have worked better as an intervie
...more
Rebecca McNutt
Mar 09, 2016 Rebecca McNutt rated it really liked it
From losing her beloved best friend when she was just a little kid to meeting celebrities and fans, Hayley has experienced more ups and downs in her life than most people ever do in a lifetime. Unfortunately she has a rare disease that will ultimately lead to death, but as this book proves, nothing is stopping her from doing what she wants and hoping for a solution. Old Before My Time is a powerful memoir that will have readers questioning how they spend their own lives and how valuable time and ...more
John Sanabria
Mar 10, 2012 John Sanabria rated it it was amazing  ·  review of another edition
Thank you so much for sharing your story with the rest of the world.
This book brought many emotions to me, sometimes made me laugh, sometimes my eyes got wet but in general it was a cute and nice experience.
Hayley, you are not only special because you got progeria, other children have the disease too but you have made the difference in the life of many people who have watched specials about you and by other people that have the bless of reading your book. You have touched our hearts.

I follow you
...more
Natalie
Feb 15, 2012 Natalie rated it it was amazing  ·  review of another edition
Very well written, humbling book. Hayley is a wonderfully positive thinking teenager with a deadly disease. But she refuses to concentrate on that fact that she is dying, and instead LIVES every minute with dreams of the future, humor and love! One of the saddest stories I ever read, and yet it leaves me smiling through my tears... And hoping... That's what Hayley teaches me... Hope is the Begin of every change to the better!
Jill Robbertze
Jan 08, 2017 Jill Robbertze rated it it was amazing
Hayley Okines' story is a touching and heart-warming memoir about the life of a girl born with Progeria, a rare condition causing premature aging. This account is written from both her own perspective and that of her Mother. I rarely award 5 stars and this time it is mostly for the content and not the writing skills. A memorable little gem of a book about an extraordinary, brave little girl who's bubbly, happy and kind disposition shines through all the way.
Lesa
Apr 26, 2013 Lesa rated it liked it  ·  review of another edition
Quick read; read it in one day. Very interesting. The writing wasn't the greatest; I noticed several typos and some sentences were just very odd. I also had trouble understanding some of the British terms used. MOT? But I enjoyed reading Hayley's story and am glad she is doing well.
Judie
Jun 13, 2013 Judie rated it really liked it
When Kerry Okines became pregnant in 1997, she and her husband, Mark, looked forward to the typical experiences of raising a child. Within a few months of their new daughter, Hayley’s, birth, however, they realized that she was not developing normally. She was not gaining weight, only an ounce or two between health visitor appointments. Kerry noticed small lumps on Hayley’s abdomen which the doctor dismissed as “nothing to worry about.” By the time Hayley was six months old, the Okines were con ...more
Stephanie
Perhaps you’ve heard of the amazing Hayley Okines, or maybe you’ve seen her on TV. Hayley was born with an incredibly rare condition called Progeria, which causes her to age eight times faster than the average person. From the time she was a baby, she looked like an elderly person, and had the physical symptoms to accompany that, including things like arthritis. She is also very small and frail. Because these children have the bodies of very old people, they rarely make it into their teenage yea ...more
Lynda Kelly
Dec 06, 2015 Lynda Kelly rated it it was amazing  ·  review of another edition
Shelves: favorites
This made for some sad reading knowing young Hayley lost her battle earlier this year. Spookily, it would've been her eighteenth birthday the day before I started reading which was heartbreaking as she so wanted to beat her progeria and reach that milestone. She certainly did better than many of the poor kids afflicted with this awful disease and even though she lost her own personal battle she ensured, along with her parents, that maybe other kids would benefit from the medical trials she parti ...more
Kylie
Apr 09, 2012 Kylie rated it liked it
Shelves: read-in-2012
I really wanted to like this book more than I did. I have followed Hayley and her story for several years now, and I guess I was hoping to learn more about the trials that she is on. It was interesting to hear both Hayley's point of view as well as her mother's. Her mother, however...I just don't know. I didn't get a good vibe about her. She is always complaining about the cards she's dealt, how she and her husband frequently fight, the lack of money that they have, yet they go on theses exotic ...more
Jessica
Apr 20, 2012 Jessica rated it it was amazing
I was lucky enough to receive this book through the First Reads program here at Goodreads. Like many people I didn't know much about Progeria. I had heard of it, of course, but I didn't know any details. Old Before My Time: Hayley Okines' Life with Progeria delves into subject matter that has rarely been touched, offering readers two views of what it's like to have your life touched by the rare disease: Hayley's mother Kerry, and Hayley herself. What touched me the most was Hayley's determinatio ...more
Julie
Dec 26, 2012 Julie rated it liked it
I saw Haleys story on a documentary on TV recently, and when I saw her book was available, I thought it would be a good little read. She is very sweet, and the book is half written by her, and half by her mum about her life living with progeria.

You have to admire the girl, who even though small and with many health issues still attended normal primary and high school when she could. Because of her television programmes, so many people throughout the world have learned about this devastating illn
...more
Alexandra
i'm going to start book reviews again. i stopped cause i was so busy. but i do need to write reviews again...even if it's not for every book.

i loved this book. i had seen documentaries on Hayley before, but reading her story was a wonderful thing too. i love memoirs and i speed through this one. Hayley had Progeria where she ages 8 times faster making her really 100 at only the age of 13. She is strong with all the tests she goes through, she doesn't let anything get in her way. even if you're
...more
Beckie Treble
Mar 18, 2012 Beckie Treble rated it it was amazing  ·  review of another edition
Loved seeing this from both Hayley's and Kerry's Points of View. I've been following Hayley's story on the on channel 5. Hayley really is an inspiration to us all. I hope that soon there will be a cure for Progria, along with everything else. Only Hayley could get away with asking Price Charles for his autograph. I told my mum this morning, and smiled. The only reaction I've found when someone mentions Hayley's name. Truly amazing.

SheLove2Read
Dec 17, 2013 SheLove2Read rated it did not like it
Shelves: dnf, 2013
This was a disappointment that I eventually decided not to finish. I had hoped to read a story about a brave young girl who lives with a horrible disease, but instead I found the majority of the beginning focuses on the Mom. While I realize, obviously, there is no story without Mom's input, I didn't pick up the book to read about Mom, but Hayley.
Tima
I've watched a few of the documentaries that include Hayley and definitely think her story is better absorbed that way. This book was written mostly by her mother and is quite choppy in all aspects. It doesn't go in chronological order and it just doesn't seem to flow very well.

Her story is a very good one - just not so much when put in book form.
Tiffany
Jun 08, 2013 Tiffany rated it it was amazing
Shelves: non-fiction
Heartbreaking at times, yet very inspiring.
Heather Lochridge
Brave Girl

I had never heard of this disease before reading this book. It's amazing how strong Hayley and her family are. Wonderful book.
Cassidy P
Hayley is a girl who has this syndrome called progeria and it makes people 100 times the age they are so her body is 112 when she is 12 so it is hard for her to do anything. Progeria is like in 1 to 10 children that are born,or something like that. But she get's made fun of because of it and its just sad.

Laced with blue veins, and eyes as wide as a bush baby. But they words that really hit us hard. Hayley's hair was thick, tied up in her pretty pink headband, she looked like she had a find head
...more
Oriyah Nitkin
Aug 07, 2012 Oriyah Nitkin rated it it was ok
After finishing this book I went online to see what the latest news on Haley is. Sadly, she passed away April of this year. With this information, I'm torn between writing an actual review and just leaving well enough alone. Seeing as her mother isn't on goodreads, I feel compelled to give my honest opinion. And Haley's mother or anyone else with a real-life connection to Haley or her family, if you ever come across this review, STOP READING NOW.

It's really hard to write an honest review of a bo
...more
Lauren
Mar 24, 2015 Lauren rated it really liked it
Hayley Okines is a remarkable little girl: she is a child afflicted with progeria, a genetic condition found in one in eight million children. The condition causes her to age at a rate eight times faster than an average person, leaving her with brittle bones, a low body weight, and a beautifully bald head. With an average life expectancy of 13 years, Hayley has defied the odds to make it past that ominous birthday. Old Before My Time recounts Hayley’s life leading up to her 14th birthday: her di ...more
Beverly
Jan 24, 2016 Beverly rated it really liked it  ·  review of another edition
I have been a long time fan of Hayley's although I had only seen a few TV specials about her. I always thought that her bravery and cheery outlook on life was incredible. When I saw that I could get a free copy of her book on my Kindle I jumped at the chance. I really did enjoy reading more about this courageous teenager than I had previously known. Hayley O'Kines is a 13 year old who lives in England and has Progeria, where the body's cells age at a much quicker rate than normal. At 13 actual y ...more
Adriana
Jun 01, 2013 Adriana rated it liked it  ·  review of another edition
Shelves: memoir, 2013
This was okay. It presented a good amount of information about an illness few people have heard of and even fewer are knowledgeable about, and hearing a first-hand account from a very brave girl and her mother really humanizes it. As a mother myself, I can't even begin to imagine what it would be like to know that one of my children lived with death sentence which meant with almost certainty that they would never emerge from their teens.

Of all the anecdotes related by Hayley and her mother, the
...more
Falla Lola
Apr 06, 2015 Falla Lola rated it it was amazing
Recently I watched a documentary Life According to Sam. It introduced me to progeria and Hayley was one of the children featured in the documentary. Two weeks later I read the news that Hayley has passed away. I am shocked and saddened by the news. It made me want to find out more about progeria and Hayley.

This book is very touching, inspiring and I cried with every page I turned. Both Hayley and her mom wrote the book - from her pregnancy to discovering Hayley's condition, medical journey, fami
...more
Tracy
Jun 28, 2013 Tracy rated it liked it
Shelves: non-fiction
Several new cases of progeria have been recently reported in the US and it was interesting to read the life and times of young Hayle Okines. Having a child with severe and profound special needs, it's often comforting to see how other parents and families deal with shock & denial, grief, loss, and loneliness.

Progeria is a ("Progeria", or "HGPS") is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means "p
...more
Ray Chatterjee
Oct 21, 2014 Ray Chatterjee rated it really liked it
Shelves: 2014, general, 2013
I ordered this book online after seeing this beautiful girl Hayley at NatGeo: Life of Extraordinary People and that moment onwards I was curious to know more about her. After a series of research about who she is and what is progeria, I discovered she has written a book about her life with progeria. I couldn't waste a minute, but to order this book immediately.

http://rateitgirl.blogspot.in/2014/10/old-before-my-time-hayley-okines-life.html

After receiving this book, I found out that it was also w
...more
Lori
Jun 06, 2013 Lori rated it really liked it
Shelves: memoir
an almost three. I found myself getting an education with this book "old before my time: hayley Okine's Life with Porgeria. this helpful and honest book is written by Hayley Okine a 13 year old girl dealing with Progeria, and also written by her mother Kerry. they take turns telling their story. Progeria is an "illness" or "affliction"{ not sure what words to use} that starts in infancy to a baby that causes them to age eight times faster than "normal" it also causes them to be small, lose their ...more
Karen Chung
Sep 26, 2014 Karen Chung rated it liked it
This book will give you a quick education in what it's like to live with progeria, a disease which ages the sufferer many times faster than normal. Mother Kerry and daughter Hayley write alternating chapters, each telling their story from her own point of view, so you get to see two sides of some of the same events. In spite of limited resources, Kerry and husband Mark really went all out to give Hayley the best quality of life possible, with attentive care, parties and exciting experiences - li ...more
Lisa Godina
Jun 05, 2013 Lisa Godina rated it really liked it
Shelves: life
I first became aware of Hayley from the Anderson Cooper show. Her parents were amazing in how they dealt with her terminal illness and yet inspire Hayley to have confidence.
Progeria is a very rare disease that causes the body to age 8 times faster than normal. Most children diagnosed with Progeria are lucky to make it to their 13th birthday.
The book is informational and insightful giving the reader perspective from both the mother's point of view and from Hayley herself.
For me personally I watch
...more
Jodi
Jan 20, 2012 Jodi rated it really liked it  ·  review of another edition
This was an extraordinary story about a brave little girl and her family. She has Hutchinson- Gilford Prgeria disease. This makes her older than her grandparents. Her body is the body of an elderly female (100) even though she is only 13. Her parents knew something was wrong and after many tests they discovered she was one in eight millon to get this rare condition. She has come to America many times over the years to meet others with the same condition. She has been through many new experimenta ...more
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“And to all the doctors and people who said there was no hope for children with progeria and they don’t live long I want to say, ‘You’re wrong.” 2 likes
“Dying only means moving into a nicer house.
We have only gone into the next room.
We still are what we have always been.
We aren’t far away. We are only on the other side of the pathway.”
2 likes
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