Ghost Boy is a deeply moving story of recovery and the power of love. Through Martin's story we can know what it is like to be here and yet not here - unable to communicate yet feeling and understanding everything. Martin's emergence from his darkness enables us to celebrate the human spirit and is a wake-up call to cherish our own lives.
(first published January 1st 2011)
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"In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, viva...more
Sometimes you find those remarkable life stories that are almost too awe inspiring to be true. This is the case with this book. Martin has to overcome extraordinary odds in order to be able to write this book, and faces deep personal issues outside of his illness before he can accept who he is and the love of an equally extraordinary woman. I loved this personal account, and I loved the way this book was written between times because it made the reality of his illness always at the forefront. A...more
If you work with people with disabilities- specifically Profound and Multiple you really should read this book. I came in at the end of an interview on Radio 4 with the author, and noted down the title. I tend to buy books almost by chance- quick read of the blurb, or a writer I already know. I went out that week to buy this book. The story is remarkable. Imagine coming round and having lost part of your life and not being able to communicate. Not saying when you were uncomfortable, being spoken...more
An amazing book, makes you think about how it might feel to live with any kind of disability. Very touching book, it made me want to cry at the end! Just an inspiring story. Only one thing to say, it's quite difficult to understand timescales as Martin seems to jump from present feelings to past feelings whilst telling his story. Nonetheless I give it 5 stars. Thankyou Martin for sharing your story with us xx
Very good read and eye opener to the world of Institutionalising Not-abled persons. Very sad story of being "locked" in your own world with no-one to understand or comprehend. But remarkable story of self-determination and courage of a loved one.
This is by no means a great piece of writing but the tale itself was stunning. I sat down to browse at the cover and read the whole book without leaving my seat. An amazing tale and one that I have shared with many people since. An absolute eye-opener!