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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss
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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss

4.22 of 5 stars 4.22  ·  rating details  ·  1,156 ratings  ·  179 reviews
Originally published in 1981, The 36-Hour Day was the first book of its kind. Thirty years later, with dozens of other books on the market, it remains the definitive guide for people caring for someone with dementia. Now in a new and updated edition, this best-selling book features thoroughly revised chapters on the causes of dementia, managing the early stages of dementi ...more
Paperback, 384 pages
Published September 30th 2011 by Johns Hopkins University Press (first published November 1st 1981)
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I spent 18 years of my professional life as a social worker specializing in the problems of the aging. Thirteen of those years were in nursing homes and rehab facilities. I could always identify the families of residents with Alzheimer's: they had big black circles under their eyes from lack of sleep. The 36 Hour Day was and is still the best thing written for the loved ones and caregivers of dementia patients. This book will help you deal with the terrible burdens of anger, love, guilt and conf ...more
Feb 13, 2015 Deana rated it 4 of 5 stars  ·  review of another edition
Recommends it for: anyone who has a family member suffering from Alzheimer's disease.
Recommended to Deana by: mother-in-law
I picked up this book because it was recommended by the doctor who is helping keep up with the progress of my husband's grandfather's disease. He recommended that all family members read it, but much of the family was avoiding it, claiming it was horrible and too depressing. So I offered to read it and pass on the information that I found useful.

It was an extremely interesting book, though very, very repetitive in its mantra - there is no way that any human being will be able to take care of a l
Jane Hoppe
I had heard that The 36-Hour Day is the Alzheimer's caregivers bible, and I can see why. Having read other books on the subject, I'd say The 36-Hour Day is a more complete reference guide, helpful in many different stages of caregiving. Chapter titles are Dementia, Getting Medical Help for the Person with Dementia, Characteristic Behavioral Symptoms of Dementia, Problems in Independent Living, Problems Arising in Daily Care, Medical Problems, Behavioral Symptoms of Dementia, Symptoms That Appear ...more
Where to begin? I read the 1990 version (16th printing) of this originally-printed in 1981 book to glean information in dealing with a loved one who suffers from dementia, so I knew going in that much of the information could potentially be outdated. Given how old it is, it's remarkably current in many/most ways that matter. (If the organization website URL'S and phone numbers are outdated, they're easy enough to find on the web.)

Overall, it was a most helpful read and am so grateful to have had
Abeer Hoque
This is a fabulous and exhaustive guide for families caring for people with Alzheimer's, dementia, and memory loss. It's been around and continually updated for the last 25 years and is couched in compassionate and clear language.

The book goes through all the stages of these tragic, often irreversible conditions, and how to deal with them in various ways, how to discuss and approach them, what (few) medications and (more) therapies are out there, the history and research behind the conditions a
wow is all i can say.. i love this book will be buying it for references ..
One of the keys to the success of this book is their acceptance that caregivers are going to have emotions, unrealistic ideas about the prognosis, misinformation about the nature of dementia and will underestimate the diseases effects on them and their family. It's okay to feel guilty, it's okay to feel conflicted, it's okay that you eventually may be unable to care for this person you love, whose personality is changing
I can't imagine a more comprehensive and compassionate book on caring for a loved one with dementia. Even if you are not a primary caregiver, this will be of interest if you know someone who is or have someone with dementia in your life. The author describes the person is trying his/her best, often making an incredible effort to get through each day and the reasons people with dementia do many of the things they do. I am dealing with this right now and it was an eye-opener that made me more forg ...more
I hadn’t had any practical knowledge of Alzheimer’s Disease beyond dealing with end-of-life dementia in my grandparents so I thought my common sense would steer me through this new journey our family is undertaking. It took a comment from a relative, who’s been dealing with neurological problems, for me to realize how inadequate my education was: when discussing getting lost while driving, I inquired why she didn’t just use her iPad? Exasperated, she replied, “Because it’s not that I couldn’t fi ...more
Larry Killion
“Mom is 87 and we've gone through a lot in the last year or so. She is diagnosed with AD and is at the point where she can't live by herself anymore. We attended an all day seminar on Dementia and Alzheimer Disease and they recommended this book. It is excellent and very thorough. It explains the different forms of dementia and all the various different problems that come with it. It covers research and suspected causes along with other medical problems. For me, the best part was when it dealt w ...more
Update: Taking this book off my "currently reading" shelf since my dad's struggle has ended. I hope to not ever have to return to it, but I will keep it around in case I am confronted with the need again. It is a wonderful and incredibly useful book. Please support the Alzheimer's Association in finding prevention and a cure for this terrible disease.

Original review: This is probably going to be on my "currently reading" list for as long as my dad has Alzheimer's. It's not a book you want to sit
36 Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease, Related Dementias and Memory Loss is a very detailed reference book for anyone dealing with issues related to persons with these diseases and health concerns. The authors, Mace and Rabins, set their book up to be a useful guide for the caregiver, relative, child or friend. From the very beginning, they write that you do not have to read the whole book at once but urge you to skip to the parts you need when and as you ...more
This book is more helpful than anything I've ever read or an advice I have ever received on Alzheimer's disease. It is the ultimate help for family and caregivers.
Dorian Martin
A classic! It's one of the best books in helping caregivers understand Alzheimer's disease and other types of dementia.
Aug 27, 2015 Diane rated it 5 of 5 stars  ·  review of another edition
Recommends it for: Caregivers
Shelves: caregiving
Do - you care for someone day in and day out - then this book is for you!
Do you know someone that cares for someone day in and day out - then this book is for you!
I think we need to know and be able to share the burdens of caregiving. Whether the patient is in a hospital, nursing center, day care, hospice, and even just every day care of someone not feeling well. We have to remind ourselves that there are only 24 hours in the day. Yes, you need 36 hours many times. This is an excellent book to p
Townsville Library
Find Dementia Awareness books in Townsville

A family guide for people who have Alzheimer disease, realted Dementias, and memory loss.
Cassie ♥

1. Some individuals may seem or even be healthy, but struggle with their "thinking going in circles". p.240

2. Be careful about medication. Each one should be specific for each type of symptoms. Some of these may make hallucinations worse.

3. When a person begins to say the same thing over and over---ask him to sing a familiar song or story. (Distraction)

4. Sundowning is normal. p. 137

I read a more recent update than this 2006 edition. Provided comprehensive information. It tended to refer to the Alzheimer's Association a lot for more information. I tried the local chapter and found it didn't provide many of the resources referred to in the book but am sure that is different depending on where one lives. Well worth the read. I did skip sections that were not relevant to my particular situation.
Tammy Kathleen
Excellent for family caregivers! FULL of information that as time goes on with your loved-one, you will begin to see for yourself and value the wisdom contained within the pages of a book! What we call in the Caregiving Industry....the 'Dementia Caregiver's Bible'!
Required reading for a class I'm taking this was an interesting and informative book. Though the topic is a bit sad, it is written in a very practical and informative and I can see it being very helpful to families experiencing dementia in a loved one.
No one has all the answers to the increasing issues regarding caring for people with dementia, but this is about as good as a book can get on the topic. If you are caring for someone with dementia, I recommend this book.
A dear friend of mine bought and sent this book to me right after we learned a couple of months ago that my husband has dementia. I hesitated to even open it at first, since we were in complete denial. However, I finally immersed myself into the book for about two or three weeks. Now I go back to it often for reference. This book is a necessity for anyone who has a family member, friend or loved one who is dealing with Alzheimer's or any other form of dementia. As much of a 'reader' as I am, I w ...more
The best book in print on taking care of a person with dementia, as well as yourself- the caregiver. Not only a must read, but a must own; especially for those caring for aging parents.
Denise Delotell
As a social worker and one who has a close relative with dementia, this is a great reference book. It can be read cover to cover or as I prefer, skipping around to the chapters most relevant at the time. Excellent advice for families and care-givers.
Very helpful...the best all in one book on Dementia. Perfect book for families and caregivers of those suffering with Dementia. Definitely a must purchase book!
Not a book I wanted to read, but since I had to, it was a lot of help in what I am dealing with in my life. I would recommend it to anyone dealing with dementia in their family.
Teri Lowder
Boy, this is the book if you are dealing with a person in your life with dementia today. However, I hope this book serves as a perverse history text once we find better solutions to prevent and/or cure these diseases. I hope in addition to better medical outcomes, we can also have a more honest, less judgmental dialogue about end of life choices. The manner in which those with Alzheimer's must carry out their final days seems more cruel on all involved with their care in addition to the afflicte ...more
Todd Landrum
Solid book with lots and lots of advice. Worth revisiting multiple times as things change.
I gave this 2 stars. Everyone raves about this book but there are real problems with it. Because it tries to be all things to all people the information is at once too much to take in, and not enough to be much help.

For an absolute beginner the Alzheimer's Association gives away a book written by a football coach who was also his wife's primary caregiver. It is both gentle and brutally honest about the disease. For additional information once you've digested the bad news, the web does a better j
This book is one of the few that I would recommend to anyone dealing with Alzheimer's disease, either directly or indirectly. After reading (and reading and reading) books, articles and pamphlets about Alzheimer's this book stands out. It gives clear, concise advice for those who know, work and love someone with Alzheimer's disease.

Yes, there is repetition. Keep in mind that this is written for people who will, most likely, be sleep deprived, highly stressed and have precious little time for rea
Reading this book was a bit dangerous at first. It's hard to read some of these things and NOT speculate on whether you have the early signs of dementia.
On the other hand, once I got past that - it was useful. It's a good reference if you're caring for a person who has Alzheimer's or some other form of dementia.
There's lots of encouragement, good checklists, and advice.
It made me feel we've made a good choice for Dad, where he is.
And it reinforced my belief that I do NOT want to be old and h
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