Hayley Okines's Blog

April 3, 2013

   Download your copy of Old Before My Time from itunes https://itunes.apple.com/us/book/old-before-my-time/id544240218?ls=1. It’s free until Saturday.


 


 


 


 


 


 


 

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Published on April 03, 2013 04:44 • 259 views

April 2, 2013



 


 

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Published on April 02, 2013 04:04 • 180 views

February 14, 2013

Thanks to everyone who came to my Queen of  Hearts ball last week. I had an amazing time and we raised £4,000 for the next Progeria Reunion. Thank you to Jason Fry Photography for the lovely photos

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Published on February 14, 2013 09:08 • 213 views

January 1, 2013

Happy New Year to everyone. Me and Mum are getting ready to fly to Boston at the weekend for results of my drugs trials. We’re hoping for some good news. Mum says it’s going to be -20 out there, so I need to wrap up warm.

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Published on January 01, 2013 00:44 • 161 views

December 24, 2012

Hayley, aged four, and mum Kerry Christmas 2001


Merry Christmas everyone. Thanks for all your lovely messages and cards. I hope Father Christmas is kind to you all. I’m hoping to get Justin Beiber concert tickets in my stocking.


 

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Published on December 24, 2012 01:32 • 153 views

December 11, 2012

Get your free copy of my book Old Before My Time now. For the next two days you can download a free copy from iTunes 


https://itunes.apple.com/gb/book/old-before-my-time/id544240218?mt=11


 


 


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Published on December 11, 2012 08:12 • 74 views

October 30, 2012

Hayley was one of six special children named The Carol Barnes Courageous Child of the Year at the Argus Acheivement Awards in Brighton on Sunday. Congratulations to the winners http://www.theargus.co.uk/news/10012299.Standing_ovation_for_children_at_Argus_Achievement_Awards/


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Published on October 30, 2012 04:41 • 62 views

October 26, 2012

Me and Mum are off to Brighton this weekend for the Argus Achievement Awards. Thanks to everyone who nominated us for the Courageous Child of the Year and Mum of the Year.  http://www.theargus.co.uk/yourargus/argusachievementawards/index/



 

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Published on October 26, 2012 03:05 • 67 views

October 25, 2012

Great news Girls Aloud are back on tour fopr their 10th anniversary. I hope I can get tickets for their Ten tour. Here’s a photo of me and Kimberley Walsh when I met them back stage in 2008. They were all so  lovely.


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Published on October 25, 2012 05:17 • 68 views

August 31, 2012

Thanks to AU Mom in Tennessee, USA  for this great review of Old Before My Time: My Life with Progeria by Hayley and Kerry Okines
Excellent read. I enjoyed the fact that the book was written in her own words. This little girl has such a positive outlook about life and death. She is such an inspiration to everyone.’

For more reviews click here: http://www.amazon.com/Old-Before-My-Time-progeria/product-reviews/1908192550/ref=cm_cr_pr_top_recent?

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Published on August 31, 2012 09:48 • 63 views

Hayley Okines's Blog

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